Mold and autoimmune

[Asil737]

Anyone’s doctor think their Hashimotos was caused by mold?

[Asil737]

Never heard of him. What path?

[marsaday]

That’s interesting RFU.

I don’t have hashis just low thyroid but aged 12 I had an operation to remove polyps from my nasal system.

I always had to blow my nose and had to carry a hanky with me in those days.

I remember the surgeon saying after, I was the worst case he had ever seen and he was in his 50’s.

One nasal passage was completely closed up from polyp growth and the other was really bad as well. I had a full sinus clean out and the adenoids removed.

I went in again aged 15 and had a second op. All good ever since mind you.

[Boohbette17 in reply to marsaday]

Wow! Amazing what you went thru! Good ,you are doing well regarding that😊 I stopped to read your post as I never tolerated mushrooms in food & feel Im sensitive to mold too. Low thyroid could be also provoked from ( unfortunately) some of our food choices. Most folks know about gluten but in my case its also a protein found in dairy , called casein, that slows me down ( thyroid) I learned a lot here about all the hormones & roles

saragottfriedmd.com/what-to...

[Hidden in reply to marsaday]

I started to have sinus problems aged 8 I have had two operations. In October 2015 in 2016 I had one of the worse sinus infections to date, however, since starting on raising my Vitamin D and taking Vitamins C I haven't had another infection for 15 months now, it's quite amazing I must put it down to the Vitamins nothing else has changed except my life is now better. I have never to my knowledge been living with mold.

[Thenel in reply to Hidden]

Hi, that’s interesting as I have Hashimoto’s and have had constant sinus problems for about 5 years? What dosage are you taking for Vit C & D?

[Hidden in reply to Thenel]

I haven't got Hashimoto's and I am not sure whether it's the Vit D or the Vit C that's cured it. Before you take Vitamins D have you had yours tested? I take 2000iu Vit D3 together with 1000mcg Vitamin K2 together. The vitamins C is a chewable one from the supermarket and is 1000mg These are all taken daily the Vitamin D3 and Vit K2 are taken with the fattest meal of the day, When you take the K2 these two work together to direct your calcium to the bones instead of the soft tissues.

When I had my first sinus operation in the 1980's I waited for nearly five years on the NHS. I was warned by the surgeon that I would have to have another op in 15/20 years time and he was right.

[formula789]

Hi. I've just had genetic testing and the results have confirmed a diagnosis of CIRS/mould illness. With barely any hormones across the board both my hypothyroidism (diagnosed 2015) and inability to respond to treatment are part of a much wider picture of poor health. Yes my doctor thinks mould is responsible for hypo issues and the whole shebang. The good news - I left my home four weeks ago and am beginning to feel a lot better. Best wishes to you

[formula789 in reply to formula789]

Sorry, the above post is by Millie07 - I'm not sure what happened

[Laura987]

In Isabella Wentz’s book Hashimoto’s protocols she does say that mould can be a trigger but that people usually have multiple triggers. She says A trigger alone is not enough to cause Hashimoto’s but that we also need the genetic disposition and intestinal permeability. She advises for anyone with Hashimoto’s to get rid of any mould in the house in an attempt to remove any triggers that could cause an antibody attack hope this helps! Her book does list a long list of triggers though with the most common one being gluten

[thyr01d]

Very interesting - I seem to have been worse since moving into this cottage which is very damp. I now have a dehumidifier and the thyroid symptoms were much better in the long hot summer when the cottage dried out. I also have a history of throat infections with ear and nose affected which fits the Broda O Barnes theory mentioned by reallyfed up - and just realised I always felt well when living in dry southern Spain. I wonder if this has been researched.

[Hillwoman in reply to thyr01d]

You might like to look up mould sensitivity on Dr Sarah Myhill's website - think you'd find it interesting. Sorry, in a hurry and can't find the link.

[SlowDragon Administrator]

Dairy intolerance is common with Hashimoto's

Dairy intolerance, or candida or Viruses are all possible causes

thyroidpharmacist.com/artic...

thyroidpharmacist.com/artic...

thyroidpharmacist.com/artic...

[AnneEvo]

I've just Googled him and just reading a tiny bit of what he said is incredible - it seems thyroid treatment has taken a huge step backwards. I think it has been mentioned on here before about thryroid treatment many years ago not just being reliant on TSH level.

[saritadelmar]

My Godson had mold poisoning and the only way to get rid of it was to take Cholestyramine, which is used to lower cholesterol. The mold in the blood attaches to the Cholestyramine and then they both are excreted from the body. Otherwise the mold just keeps circulating through the blood stream.

[vocalEK]

Very interesting. From earliest childhood I remember being admonished for breathing through my mouth, but the problem was that my nose was so stuffed up the only way I could get air was to breathe through my mouth. My aunt finally convinced my mother to take me to an ENT, and at the age of 8 my tonsils and adenoids were removed. My mother says the surgeon told her I was the "pussiest mess he had ever seen." Now, ironically, >60 years later I again have problems using my nose for breathing because I have chronic post-nasal drip. I have read that this can be brought on by GERD -- the mucus is the body's way of defending the esophogus from stomach acid. I never had GERD until right after the Women's Health Initiative (WHI) report, my doctor thought he was helping me by taking me off estrogen, and then to prevent bone loss put me on Fosomax, which gave me nausea and dry heaves. I think that's what caused the "small hiatal hernia" that was noted in a CT scan report after lung surgery a few years ago. I could kick myself by putting up for so long with "treatments" that were actually harming me. I am the poster girl for iatrogenic disorders. Next week I face a discussion with my new OB/GYN who again wants me to stop taking HRT. I have no personal or familial history of heart disease, strokes, or breast cancer. I suspect that women who went on HRT as the solution to PCOS symptoms when they were pre-menopausal are not subject to the same dire consequences of the women in the WHI study who were average age 62 when started on HRT.

[Pandapop21]

Ha that is amazing! I too have always had ear nose and throat issues my tonsils were so big when they got infected they met on the middle almost every 4 weeks I lost almost 75% of my hearing because tubes could drain at 12 I had my tonsils and massive adanoids removed grommets put in then at 16 I had to have one surgically removed as polyps grew around it ... then at 42 I lost all the lower frequencies in my right ear to an inner ear infection

[KaSimO in reply to Pandapop21]

As a child age 5 (1972) I had my tonsils & adenoids out as I had recurrent infections & was unable to eat/extreme weight loss. Now at 51 I have tinnitus in Rt ear-GP says due to mucus which she is unable to treat? Recurring theme here. Diagnosed Hashimoto 3 years ago but symptomatic for at least 6 years previous! Kept getting told I was borderline until I had a sympathetic & knowledgeable Locum Dr, pity he was 1 in a million. GP now will only go off TSH levels. Scary how ignorant our health professionals are. They’re supposed to be the educated ones 😱

[vocalEK]

Add to that list of "pure poison" the statin drugs. I spent a lot of money on a new bed when I thought the old mattress was causing the sharp pains in my lower back. Then I read an article about statin drugs breaking down muscle and the kidneys having problems dealing with the results. So as an experiment, I went off the drug. A few days later, the back pains vanished. I waited a week and then tried taking the drug again. Pain came back. Needless to say, I stopped taking it and threw away the rest of the pills. Doctor wanted me to try a different brand. I said, "No thanks. I'll start taking slow-release niacin."

[richar03]

Yes I think mold was a factor in my hypothyroidism, but I think it was the straw that broke the camel's back alongside a range of other issues, related to diet and extreme stress.

[formula789 in reply to richar03]

Yes I can relate to that. Unfortunately I have the 4-3-53 HLA-DR multisusceptible gene and believe that long-term exposure to mould could well be the source of my stress, anxiety, insomnia, and a cluster of issues including poor conversion of t4 to t3, and hence ongoing hypo symptoms (apologies to Asil737 for talking hypo not Hashi's). There are other factors involved many of which are present in my case. Sadly the particular gene is strongly expressed in my family and I have passed it to my daughter, and she to her three children. My daughter has been very ill for several years and two of her children show symptoms.

[richar03]

Thank you for your insight from your experience. I will look into the effect of gene expression. I have been following a mitochondrial health protocol with e.g. saunas and NT Factor, alongside the more conventional gluten free, organic, low sugar, sleep, exercise in nature etc etc. Might be worth considering for management of your symptoms. I feel generally dejected though that we can't escape general pollution and environmental toxicity like microplastics. If you're already chronically unwell then I think it's going to be hard to recover to health given the environmental problems.

[formula789 in reply to richar03]

I agree with all that you've said re the environment! In terms of going forward I pretty much follow the same protocol as you. But it's been quite a learning curve since the day my doctor suggested a genetic test for biotoxicity. I believed low thyroid was the problem and knew almost nothing about CIRS/mould disease (and to be honest would probably have been a bit skeptical). That's changed! But it's not all bleak. I feel better living away from my old home (despite obvious sadness) and glad that I can make more informed choices with this knew knowledge. Thanks for your wisdom and the very best.

[Asil737]

No worries, @formula789, I actually have researched that most hashi patients have a poor conversion for T4 and t3. I was told that mold is everywhere in our envious and living in a Victorian 1875 home, there is no way to eradicate it all. So 40k or treat optimally with thyroid hormone? That is how much remediation is quoted.

[Asil737]

I took my nasal temp and it was 98.4 this morning. I have both signs of hyper and hypo at times. I feel like I just keep swinging. Hashimotos is so difficult to treat. I feel like I need to check my temperature everyday like the emperor who had his poop checked everyday to see what to eat?!

[Asil737]

I took my basal temp and it was 98.4 this morning. I have both signs of hyper and hypo at times. I feel like I just keep swinging. Hashimotos is so difficult to treat. I feel like I need to check my temperature everyday like the emperor who had his poop checked everyday to see what to eat?!