Hi, my TSH is 0.99 and T4 13.2 i’m On 100mcg Levothyroxine. I was diagnosed with Hashimoto’s in 2011 my antibodies were 350 never been checked since my GP only ever does the TSH and T4 anything after that is no go.
I’m feeling dreadful I have a swelling on the left hand side of my neck it comes up huge and my neck goes as if I have a rope round it, it never really goes away but subsides and then flares up again I also had a neck scan in 2011 it showed noduals on my thyroid i’m at my wits end have so many symptoms, I was under an endocrinologist for sometime then he left and the lady who replaced him discharge me..now what? once diagnosed with Hashimoto’s thyroiditis does it stay forever..
May I add my GP got quite annoyed when I told him I was on this forum..any advice would be more than welcome at witt end.
Thank you.
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Benadrove5
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What's the range on FT4, your result looks too low
For full Thyroid evaluation you need TSH, FT4, FT3 plus TPO and TG thyroid antibodies and also very important to test vitamin D, folate, ferritin and B12
Essential to test FT3
Low vitamin levels are extremely common and improving these is often first step to improving symptoms
Private tests are available. Thousands on here forced to do this as NHS often refuses to test FT3 or antibodies
Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have money off offers.
All thyroid tests should ideally be done as early as possible in morning and fasting. When on Levothyroxine, take last dose 24 hours prior to test, and take next dose straight after test. This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, GP will be unaware)
If also on T3, make sure to take last dose 12 hours prior to test
If antibodies are high this is Hashimoto's, (also known by medics here in UK more commonly as autoimmune thyroid disease).
About 90% of all hypothyroidism in Uk is due to Hashimoto's. Low vitamins are especially common with Hashimoto's. Food intolerances are very common too, especially gluten. So it's important to get TPO and TG thyroid antibodies tested at least once .
If not, ask GP for coeliac blood test plus vitamin D, folate, ferritin and B12 testing
According to Izabella Wentz the Thyroid Pharmacist approx 5% with Hashimoto's are coeliac, but over 80% find gluten free diet helps, sometimes significantly. Either due to direct gluten intolerance (no test available) or due to leaky gut and gluten causing molecular mimicry (see Amy Myers link)
Changing to a strictly gluten free diet may help reduce symptoms, help gut heal and slowly lower TPO antibodies
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