What I've learnt from 10 years of Hashimoto's - Thyroid UK

Thyroid UK

137,936 members161,765 posts

What I've learnt from 10 years of Hashimoto's

ds_charles profile image
9 Replies

Hi everyone,

I was contacted for advice by a family friend recently diagnosed with Hashimoto's. I wrote her two long emails relating my experience - and it was only then that I realised I have been living with Hashimoto's for 10 years!

I have now edited those emails into a juicy blog post. It's everything I wish I had been told 10 years ago - from the initial symptoms and the psychological difficulty of diagnosis, to the dangers of learning too much and how I found happiness with Hashimoto's.

davidcharles.info/2018/10/h...

I wanted to share it with you here because I have personally got a lot from reading the experiences of others on this forum.

Of course, every body is different and this is just my experience.

I wish you all the best, and thank you!

David

Written by
ds_charles profile image
ds_charles
To view profiles and participate in discussions please or .
9 Replies
Aurealis profile image
Aurealis

It looks good - don’t have time to read it all today x

MaisieGray profile image
MaisieGray

I enjoyed reading your upbeat, intelligent and interesting perspective; and have signed up to your weekly newsletter.

ds_charles profile image
ds_charles in reply to MaisieGray

Thanks Maisie, how kind! I hope you enjoy reading more things that are hopefully as upbeat, intelligent and interesting (he says, blushing) :)

Kipsy profile image
Kipsy

Thank you, David- I’ve just enjoyed reading your article with a morning cuppa before the rest of the house wakes up and we’re thrown into the maelstrom of trying to get out of the house for the 7.10 school run. It’s a great piece of writing although personally I am very glad that I pursued things a bit further...getting T3 and a DIO2 test etc has made a big difference to me. Love your self care ideas, especially the sauna bit...it’s hard to allow oneself the time to stop, there’s always something that needs doing but you’re absolutely right. The spreadsheet idea for tracking contact with friends might sound like madness to some but it really appeals to me! I recently went to a 50th birthday party and connected with so many old friends ...it’s too easy to retire into oneself when you’re feeling rubbish and lose contact. Old friends are so valuable...it felt like we were back in our early twenties again when we all knew each other’s well and were having a fabulous time in new jobs in London. Anyway, I digress...thank you very much for posting. I really did enjoy it.

ds_charles profile image
ds_charles in reply to Kipsy

Thanks Kipsy!

I agree that pursuing things is a good idea - it's just knowing when to stop that was the trouble for me. Perhaps I should make that clearer in the blog post. (And, of course, I wouldn't have been able to come to my present condition without first learning all those lessons.)

Love a spreadsheet! :D

Kipsy profile image
Kipsy in reply to ds_charles

I think you did make it clear! I feel exactly the same...I took things to the nth degree...nutritionist, masses of Genova tests, strict restrictive diets, huge amounts of research, etc etc. Life became dominated by trying everything to find a solution rather than accepting but then I’ve always been someone who is all or nothing. I do feel very good now so maybe I’d never have got here without all the above. After about a year or so, I finally stopped seeking answers. Life is now for living!

ds_charles profile image
ds_charles in reply to Kipsy

Wonderful! Long may that feeling continue!

Irishbutterfly1 profile image
Irishbutterfly1

Thank you - good for you and all the best.

Steni profile image
Steni

Wonderful -

You may also like...

Hashimotos 13 year old

wondering if you could help? My 13 year old daughter has Coeliac Disease and Hashimotos (I have Type

Hashimotos... what's the difference?

information I have on my own or by speaking to some of you lovely people!! Well, I've just been on...

Hashimotos for at least 34 years

Hi, I'm 54 with hashimotos diagnosed when I was 20. For twenty years I was fine with a GP checking...

Clarification on what is Hashimotos

meant that you had Hashimotos. I ran off the i fo sheet on the NHS website statijg that if you had...

From Hashimoto's to Graves disease? What should they test?

Diabetes, Addison's disease and for 16 years I had hashimoto's disease. I have done well replacing...