Hypothyroidism is taking over me 😪: Hi I’m new... - Thyroid UK

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Hypothyroidism is taking over me 😪

Tryingherhardest profile image
•43 Replies

Hi I’m new to the group and joined as I feel alone and fed up basically feeling sorry for myself today after telephone appointment with the doctor .

I was diagnosed with hypothyroidism afew months back tsh over 100 and still no change on 100mg of thyroxine and just feel terrible daily but have 8 month baby and 6 year old with dravet syndrome with a list of other challenges to go along with her .

So I have no choice but to get up and muddle through the day

I have family and friends but they all have there own life and just don’t see how hard getting through the day is for me .

My doctor still isn’t referring me to a hospital after my last test results of no change which I find very frustrating and he just keeps telling me it takes time but he’s not getting I don’t have time !!!

I take supplements , go to personal trainer 3 times a week so I’m trying my hardest but I’m still 14stone which goes up and then back down but never any lower , it’s driving me crazy !!!

I also take funny turns which nearly floor me and takes me all my time to manage my kids and get into bed which is scary !!

My average day I’m in bed for 7pm and no house work done , it’s terrible and the opposite of who I truly am , I’m really at the end of my teather

Thanks for giving me somewhere to vent to

Xxx

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shaws profile image
shawsAdministrator

Welcome to our forum and I am very sorry for you - poor soul - with a little baby and child to also look after.

First, members are very helpful and will enable you to become knowledgeable as doctors seem not to be at all. That's why we have more than 80,000 members who haven't found relief through convential diagnosing/prescribing.

Weight gain is a clinical symptom of hypothyroidism - one of the many, many symptoms and I am sure you can tick off more than a few from the following lis:-

thyroiduk.org.uk/tuk/about_...

Forget personal trainer and dieting at present. The priority is to get onto an optimum dose of thyroid hormones that bring your TSH to 1 or lower - not higher as many doctors believe.

We have to read, ask questions and learn how to care for ourselves.

After delivery of a baby many women become hypothyroid. Hypo - means slow and that equates to our thyroid gland not providing sufficient hormones to run our whole metabolism. If you exercise too and dieting to try to lose weight before you are on an optimum dose you are depleting what little hormones are in your body so we have to start at the beginning with some hints.

First, always get the earliest possible blood test (fasting and you can drink water) and also allow a gap of 24 hours between last dose of levothyroxine and the test and take afterwards. Also take dose - usually first thing on an empty stomach - with one full glass of water and wait an hour before eating. Food or coffee can interfere with the uptake of the thyroid hormones (levothyroxine).

Ask GP to test TSH, T4, T3, Free t4, Free T3 and thyroid antibodies. B12, Vit D, iron, ferritin and folate. Follow advice above for earliest appointment etc.

(he or lab probably wont but those not tested you can get privately - we have several labs).

You are looking to get your results to around 1 or lower for the TSH and near the upper part of the ranges for Free T4 and Free T3 - these are rarely taken by the NHS. I will give you a link re blood tests and you can see why these are necessary.

Get a print-out from the surgery and post your results with the ranges. Ranges are in brackets after the results and are required so that members can advise.

thyroiduk.org.uk/tuk/about_...

thyroiduk.org.uk/tuk/testin...

Levothyroxine (T4) is an inactive hormone and it has to convert in your body to T3 (also known as liothyronine) the only Active Thyroid Hormone, so we have to sufficient to convert to T3 as that would be the 'engine' to run our whole metabolism from head to toe.

It is a matter of reading, asking questions and members are very helpful.

Weight gain is one of the commonest questions. It is due to being hypothyroid and our metabolism slowing right down and not being on an optimum dose yet. Doctors are apt to be 'happy' if the TSH is somewhere in the range when we need it to be 1 or lower. It is a fact of us educating doctors.

Tryingherhardest profile image
Tryingherhardest• in reply toshaws

Thank you

I will go to doctors and get a copy and post .

I do no I’m low in iron but only giving me 210mg daily should be on 630 I’m told but need to get tsh down first .

I’m on 5mg folic acid and take b12 supliment 1000pg , militi vitamin, rhodiola and ashwagandha daily .

I also take a protein smoothie every day with Maca and healthy supliments to kick start me off .

I always take my thyroxine at 6am or before and wait to drink my smoothie and take my supliments then take iron and folic acid in afternoon with more supliments .

It truly is taking over my life and before I no it I’m in bed with kids .

I feel scared to give up the pt sessions because I’m so fat and I feel it makes everyone see I’m not just being fat and lazy , I also feel on these days I get more done ??but I’m still in bed for around 7 🙈

Will get organised and up to docs before school run

Thanks again x

FancyPants54 profile image
FancyPants54• in reply toTryingherhardest

PT's will understand nothing about hypothyroidism so they will push you too hard. You really don't want to be doing that sort of exercise right now. You are not lazy, you are unwell. No one would suggest you went to the gym if you were suffering pneumonia, and rightly so, the same should apply here.

The only supplement you should take anywhere near iron is vitamin C in high strength dose to help the iron absorb. So you might want to move your iron dose to bedtime to avoid the other supplements you take at two points during the day.

Tryingherhardest profile image
Tryingherhardest• in reply toFancyPants54

Thanks for that I will change to night xx

greygoose profile image
greygoose• in reply toTryingherhardest

Hi Tryingherhardest, welcome to the forum.

As shaws said, the first step to getting well is getting hold of your results and posting them here. We need to see what was tested and exactly what the results were. It's all very well for your doctor to say it takes time, we know that! But, if he isn't doing the right tests and giving the right treatment, we could wait forever. :)

Secondly, let's have a look at that supplement list of your.

I do no I’m low in iron but only giving me 210mg daily should be on 630 I’m told but need to get tsh down first .

Is that what your doctor told you? I would question the reasoning behind that if I were you, for two reasons :

a) why? would supplementing iron stop the TSH reducing? who said so? where's the proof of that?

b) will the TSH be able to drop without optimal ferritin? you need optimal iron for the body to be able to use thyroid hormone efficiently, so it's possible it won't drop without optimal ferritin.

If he cannot give you a satisfactory explanation for this weird comment, then I would buy my own iron and self-treat with it. Don't be afraid to question him. :)

I’m on 5mg folic acid and take b12 supliment 1000pg , militi vitamin, rhodiola and ashwagandha daily .

Did you have your B12 and folate tested before starting supplementing? If so, what were the results? 1000 mcg might not be enough. Is it sublingual methylcobalamin you're taking?

Folic acid is not the right thing to take. Methylfolate would be better. If you are taking B12, you should be taking a B complex, because all the Bs work together, and need to be kept balanced. So, get a good B complex with at least 400 mcg methylfolate and that will do you more good than the folic acid on its own.

Multi vits are an absolute no-no! At best they will do nothing, at worst they could be making you worse because they contain things you don't need. You should only be taking what you need.

Rhodiola and ashwagandha could be working against you. Rhodiola is a stimulant, and that's not what you need. There's nothing worse than stimulating a sick gland. Ashwagandha could be reducing your cortisol, and without knowing what your cortisol levels are, that could be a bad thing.

I also take a protein smoothie every day with Maca and healthy supliments to kick start me off .

What's in the smoothie?

Not many people find that maca helps them with thyroidie things. It probably won't be doing you any harm, but you could be wasting your money, and you're already doing that with the multi-vit!

So, what healthy supplements are you taking? You mean on top of the list above? Be very careful of the word 'healthy', because it's not always what you think it is.

Your personal trainer, for example. Does s/he know anything about thyroid? It may sound like a 'healthy' idea to go to the gym three times a week, but if you're hypo, over-exercising can make you put on more weight rather than losing it. It will negatively impact your conversion of T4 to T3. So, as it's low T3 that makes you hypo, you could be making yourself more hypo!

Hypo weight has little to do with exercise and diet. It is due to either low metabolism or to hypo-type water retention. Neither diet nor exercise will do anything to get rid of that. What gets rid of it is optimising your T3. You are just at the start of your journey, so your FT3 is bound to be low at the moment. Give your body a chance to recover by just gentle walking or swimming for the time being - forget the gym! It won't make you lose weight, just depress you because you're not losing weight after all your effort. Be kind to yourself, none of this is your fault. But, by taking control of your health, you can do something to reverse the situation. :)

Tryingherhardest profile image
Tryingherhardest• in reply togreygoose

Well my head is even more muddled but appreciate all the info xx

Will need to take time to disect as I truly feel I need all the stuff I’m doing to get out the door 🙈

The iron was another doctor who told me to start with 210 and when seen usual doctor he said should be 630 ferrous fumarate but keep to 210 until tsh level reduced .

Even after today’s call he keeps telling me we need to deal with 1 thing at a time , reason I’m on here, it’s upsetting me.

My daughters OT has under active thyroid and went private so was her that told me to do the personal training xx

The b12 I was advised from Holland and Barrett

The rhodiola and ashwagandha was me googling and I feel they get me out for school run with my smoothie and if I don’t have I just can’t get motivated but could be all in my head trying to feel better I truly feel confused with it all xx

My smoothie contains maca , chia, cacao, vegan blend chocolate smooth from my protein and milled linseed mix also Greek yoghurt xx

I haven’t a clue what tests are / have been done and really only thing that’s stuck in my head was tsh over 100 and should be no more than 4 which I was shocked !!

I need to bring my phone out and read this to him which I will do because it’s all to much for my brain to work out xx

I actually feel stupid I haven’t asked more but I just go with what they tell me xx

I feel I want to go private

But when I called was £200 just to speak to doctor before tests , I don’t have that kind of money xx

greygoose profile image
greygoose• in reply toTryingherhardest

Yes, it is confusing at first, but you will understand it all with time. Take your time. Work through it slowly. But, don't expect your doctor to have much knowledge or know what he's talking about. He probably spent about 15 mins on thyroid in all his years at med school. That's why forums like this exist.

vegan blend chocolate smooth from my protein

I don't know what this is, but do make sure it doesn't contain any form of soya. Soya is very bad for hypos, and will make you more hypo.

Your TSH was very high to begin with. So, it is going to take you a long time to get better. But, your TSH should come down to around 1 or under. 4 is still too high.

I understand what your doctor means about only tackling one thing at a time. But, when you start thyroid hormone replacement, you have to wait six weeks to feel any sort of change. During those six weeks, there's absolutely no reason why you shouldn't work on your nutrients. Raising your ferritin will make you feel so much better - much better for you than rhodiola and all that.

How much levo are you taking at the moment, and how long have you been on it? It's probably not worth asking for your results at the moment, because we know that with a TSH like that, your FT4/FT3 are going to be low. But, next time you have a test - and that should be six weeks after starting a dose - do remember to ask. It is your legal right to have a copy in the UK.

A personal trainer might be helpful in the future, but not now. Right now, it's probably making you worse.

Never, ever take nutritional advice from a doctor, a nurse or someone that works in a health-food shop. Holland an Barrette especially. They are not noted for the quality of their supplements. Don't even set foot in there until you know a lot more about nutrition. Advising you to take B12 without getting tested has set you back by 5 months. You will have to be off it for 5 months before you can get an accurate test result. No point in testing it now.

It's more than likely that your doctor will just pooh-pooh everything you've been told on a thyroid forum, so I'm not sure it's a good idea to read it out to him. Doctors often don't like their patients to be informed. Even if you did ask more, they probably wouldn't be able to answer your questions. Doctors know so little about thyroid. So, please don't feel stupid. We're supposed to be able to trust our doctors, but with thyroid, they just don't know enough. And, there's no guarantee that things would be better if you went private, anyway. So, save your money and learn what you can from here, and take charge of your own health. :)

Tryingherhardest profile image
Tryingherhardest• in reply togreygoose

Thanks again think I’m going to be saying this a lot xx

I can’t temember exactly when this all started but few months back now so have my test results from 5/7/18 as my previous test still not back and was done on 15/8/18

Free T4 level. LO 7.0

Pool/L. (12.0-22.0. U)

Serum TSH level >100.00

So I never got T3 test ??

I will stop all self medication and smoothie as I’m sure soya in it , you will cringe but I take T5 which is full of stuff before going to pt so I’m able to get through it and speak with Craig my PT tomorrow , he’s a good guy with a lot of experience but need to get him to research thyroid for me if going to keep excersising with him or even put off until better as I need to get well !!!!

shaws profile image
shawsAdministrator• in reply toTryingherhardest

I think you would be better at concentrating in getting your medication to optimum as exercising will reduce the effects of the dose before we get to an opitmum dose. Optimum means a dose that makes us feel well or a different thyroid hormone sometimes.

greygoose profile image
greygoose• in reply toTryingherhardest

It's not possible that your doctor doesn't have the results of tests done on 15/08. What on earth was he testing for? If he hasn't had them back then he should be chasing them up.

It's very rare that they test for FT3 on the NHS. But, really no need with those results, because the FT3 is obviously going to be very low. So, you really should give up your PT at the moment, because it can only make you worse. Did you tell him that you were hypo? And, I would give up the T5, if I were you. It's not likely to do you any good, anyway.

Patience is the thing with this disease. Nothing is going to happen in a hurry. But, if you have patience, things will get better eventually. You didn't tell me how much levo you're taking. Have you had an increase since you started?

Tryingherhardest profile image
Tryingherhardest• in reply togreygoose

I’m on 100micro grams and only started on 25

I just feel I have no time left .

I usually get results back within days and receptionist even called lab to chase up this time last week and called me back to say increase to 100 from 75 but defo not in as they couldn’t give me print out .

Can’t remember exactly what doc said on phone today but they weren’t in but could tell me to stick with 100 .

My head bursting with it all , ontop of that the next appointment I can get is 17th sep and I made it but need to cancel as away for overnight 🙈xx

FancyPants54 profile image
FancyPants54• in reply toTryingherhardest

You can't think like "I have not time left". You have to change your mindset. You are unwell and need a lot of time to get better. You are trying to push your body through it and it won't work. It will make things worse.

The women who are advising you here are very experienced and very helpful. You have been given so much good advice. Print it off and start sorting it out into order. Iron is vital and will make you feel better anyway so ignore your GP's comments on that and get a good supplement for it as has been mentioned above. Drop all the extra bits and bobs of "healthy" supplements because they aren't focussed on your thyroid. And yes, you have to stop the PT. He may well know how a hypothyroid patient should exercise when they are optimally dosed on their medication. But not now, when your body is desperate for energy.

Learn to relax. That means don't fight it. Really relax. Don't feel bad about going to bed with the kids. Do what you have to do.

Tryingherhardest profile image
Tryingherhardest• in reply toFancyPants54

Thank you I really appreciate all this advice , feel like I’ve had a bit of an emotional break down to come onto here xx it’s just a lot to take in but your totally right I need to cut out all my self help concoctions and feel what it’s like without everything apart from my prescribed medication xx I’ve also used sugar and red bull in excess to get me through the day

You see before I new it was my thyroid I was pregnant and before I was pregnant my 6 year old was seriously unwell from 3 months to the point of nearly loosing her afew times and spending months ill or in intensive care so for basically 5/6 years I’ve been trying to find energy to get through it all and everyone around me sees me as being strong , coping and in control when fact is everything is out of my control and actually scares me a little stopping everything which sounds quite wrong as I read it back xx

FancyPants54 profile image
FancyPants54• in reply toTryingherhardest

Don’t think of it as stopping everything. Instead you will be focusing on targeting what is important. The medication and the supplements you actually need.

Red Bull has to stop! That will wreak your body. No one understands hypothyroidism unless they have it. But you can educate them. It’s important to understand yourself that this is a serious illness. Before they discovered a way to treat it, people died a long, slow death of it. We are lucky.

marigold22 profile image
marigold22• in reply toTryingherhardest

Leave any type of training for now. Your body is not strong enough right now to put it through any type of hard exercise. You are probably struggling to even walk. x

shaws profile image
shawsAdministrator• in reply toTryingherhardest

These photos will cheer you up. It gives you a target to aim for but whatever we do it has to be slow and steady. We have a serious illness which should be easy to treat if we're given options in medications - actually not medications but 'essential hormone replacements'. It is the lack of essential hormones which run our whole metabolism that we're short of. Once diagnosed all other prescriptons for any other conditions are exempt and we pay nothing due to being hypo - very serious if untreated.

stopthethyroidmadness.com/h...

Tryingherhardest profile image
Tryingherhardest• in reply toshaws

Wow i just glossed over before and after pics but they look greAt after xx well done to all the girls still smiling xx defo makes me feel better 😃

shaws profile image
shawsAdministrator• in reply toTryingherhardest

We can have an aim in in mind when we get to an optimum dose of whatever suits us. Sometimes it might mean trying othere options in hormones but not always.

Peanut31 profile image
Peanut31

Hi

You have come to the right place for help.

I see that shaws who is an experienced member and has helped me out no end, has offered you plenty of good advice.

With regards your weight loss, you could run a marathon everyday and it will not help weight loss until you sort out your thyroid issues.

I suspect your T3 is low and you are using it just to live day to day without using your T3 to exercise on top of this.

Whilst you are on levo your GP should be testing your thyroid every 6 weeks, with blood tests TSH, T3 & T4 and increasing your Levo dosage by 25mcg each time, until your results improve, but, most importantly you feel better.

If your GP refuses to do all three thyroid blood tests then many of us have to pay privately for them, either with medi checks or blue horizon. It's a good idea to get your vitamin levels checked out as well.

You are feeling so ill because you are not on the right dosage of Levo.

A starting dosage is 50mcg and then goes up by 25mcg each time. You mentioned your TSH was 100 a few months back, so on 100mcg I don't think you are there yet and you should have had another blood test with your GP.

As shaws has mentioned for us to feel better we need our TSH at 1 or below and our T3 and T4 results in the upper figures of the ranges. You will find that GP's really don't know enough about the thyroid and often fob us off, with, it's not your thyroid, or, your results are in range.

Remember just because they state they are in the lab ranges, it doesn't mean we feel better. I can speak from experience at this.

Once you have had your blood results back post them on here and the experts can offer advice. Always make sure that you have thyroid bloods taken before 9am in the morning and don't eat, drink water only and don't take your Levo before the test.

Best Wishes

Peanut31

Tryingherhardest profile image
Tryingherhardest• in reply toPeanut31

Thanks for that , my last bloods were 2 weeks ago but doctor said not all back but going up to ask for print out and make another appointment xx

I’m going to show him all this as he needs to take this seriously !!

You are all so knowledgable and I’m sure with all this help I will become stronger and more assertive when dealing with him .

I actually showed him everything I was taking ontop of what he is giving me , there I was with my bag 😂 like someone demented but he never told me anything like o have been told on here in space of an hr xx

Thanks again everyone, I hope you are all feeling better than before xxx

shaws profile image
shawsAdministrator• in reply toTryingherhardest

We are not all that knowledgeable but through one another we've gained more information that has enabled us to recover or improve. Also it also shows that the medical professionals are not 'professional' when it comes to diagnosing/treating patients. We are only given levothyroxine which thousands and maybe millions have no problems with but most on this forum do have and it is a relief to find out that, yes, there is options. They used to be available on the NHS but have been withdrawn which I think is shocking, to say the least.

Tryingherhardest profile image
Tryingherhardest• in reply toshaws

I don’t no if you can see but I posted previous results and only have T4 7.0

Haven’t been tested for T3

I need to get them checked and from where ?? Xx

shaws profile image
shawsAdministrator• in reply toTryingherhardest

This is what you posted:-

Free T4 level. LO 7.0

Pool/L. (12.0-22.0. U)

Serum TSH level >100.00

TSH levels - 100 (that is identical to what I had and I know how unwell one can feel and I didn't have young children to care for.

FT4 is low but there's no ranges.

Doctors have been directed that only TSH and T4 is required but that is due to 'fools' who know nothing about our metabolism.

You will get gradual increases of 25mcg of levo every six weeks and you will slowly begin to feel better. It might have taken us a number of years to become hypo, especially if our testing was not done when we complained and I was told I had so many other things and even an operation on my throat which was nonsense as I didn't have a 'web' in my throat and that is what the specialist said I did. They don't return your money either. Not one doctor diagnosed me - it was a first aider who helped me onto a plane as I was too ill.

So, all blood tests have to be at the earliest possible, fasting (you can drink water) and allow a gap of 24 hours between last dose and test and take afterwards. Put levothyroxine somewhere else the day before so that we aren't automatically going for the levo in the morning and can mess up our results. Also make your appointments week ahead so you always get the earliest as TSH is highest then.

Ask for TSH, T4, T3, Free T4, free T3 and thyroid antibodies. B12, Vit D, iron, ferritin and folate. The tests the lab may not do - even if GP requested - you may have to get privately and we have some recommended labs that do home pin-prick tests.

Be good to yourself and pamper yourself a bit whilst looking after your children (as best you can) and hopefully in the next few months you will soon be much better and wont even be back onto the forum as life will be symptom-free and easier than it is at present. You should post similar to those below - I have copied someone's:-

The following is an example of how results of tests plus the ranges

might be:-

TSH - 4.89 (0.35-5.00)

Free T4 - 18.2 (9.0-21.0)

Tryingherhardest profile image
Tryingherhardest• in reply toshaws

Recommend away please as I’m on a mission today 😃

My next blood test is 19/9/18 @ 10.30

We can’t get blood taken from our doctors we go to local hospital / clinic and I’ve always been 10.30 but have taken everything .

So normally take thyroxine at 6am , on that day wait until after bloods for test !!

Now we also take a piece of paper to hand to nurse , this time the boxes ticked are

Haematology FBC

Thyroid No Therapy

I’m clearly on thyroxine and last years have it wrote on my paper .

I’m starting to worry as if there not telling me something , I’ve got new doctor appointment for 12/9/18 with different doctor as I’m just not happy with what I’ve been told from him and what I’m being told on here .

If they don’t no what there talking about the should refer us to someone who does .

I will wait until 12th to find out what this doctor comes up with .

Any recommendations as I said for private tests and doctor would be greatly appreciated xxx

shaws profile image
shawsAdministrator• in reply toshaws

I have been well now for a numer of years - before the forum began Thyroiduk.org.uk was the one to help me as well as two excellent doctors, one has since died and the other - long past retirement still helps patients although he resigned his licence so that he could still advise patients instead of them withdrawing his Licence which they threatened to do to doctors who treated 'patients' as they were trained to do before blood tests and levothyroxine were brought in to replace guidance by doctors and prescribed Natural Dessicated Thyroid Hormones who also didn't need blood because they knew all of the clinical symptoms and it is the symptoms the treated and alleviated but now all depends on a blood test alone.

Tryingherhardest profile image
Tryingherhardest• in reply toshaws

Can you advise me his name to contact ??

Tryingherhardest profile image
Tryingherhardest• in reply toTryingherhardest

How long did it take for you to become well ?? Xx

FancyPants54 profile image
FancyPants54• in reply toTryingherhardest

You are very early in your journey. I wouldn't go down the private route yet. You just need to slowly work your way up the dosage of Levothyroxine until optimal. There are no short cuts, no matter who you pay to see. And if Levothyroxine works for your that will be best because you will get it for free on the NHS. You don't know yet if you might have a problem with it and therefore you don't need to see Shaw's doctor who can't prescribe you the way your doctor can.

I've read your thread. I would caution you. Don't go blasting in to the doctor and reading all these recommendations to him or demanding he reads them. You will instantly alienate the doctor and put their back up. They will poo-poo what we are talking about and tell you not to use the Internet. It will rock your confidence and make you miserable. Learn all you can on here and from books (Your Thyroid and How to Keep it Healthy" by Barry Durrant-Peatfield - available on Amazon is a good book for a beginner to start with). And then start to use your knowledge carefully at the right time with your doctor. Not all at once when it's not relevant. He can't refer you to someone who knows more, he can only refer you to an endocrinologist and they are as unhelpful for thyroid patients as GP's in many instances. It is possible to find a good one, but not easy and again, not necessary for you yet.

It's good that you are on a mission today. But use that energy and focus to help yourself learn and process what you are learning.

It's too late for this time, but the next time your hospital does bloods, try and get an earlier appointment than 10.30 and yes, don't take your daily meds until afterwards. I take mine with me and take it when I get back in the car. Don't forget to wait an hour after that before eating and drinking.

You will get there.

Tryingherhardest profile image
Tryingherhardest• in reply toFancyPants54

Sorry just seen this xx Thanks for that advise , I just am truly struggling with my kids and don’t no what to do xx reason I joined yesterday xx

Desperate is how i feel , if I could Just potter around at my own pace I could deal with it but I’ve got to keep up with my life like I’m normal as have no option like most on here I’m sure !! Xx

lucylovesgin profile image
lucylovesgin

Hi there, I just wanted to add a little about the emotional side of things. I'm about 18 months into this condition and can still remember the early days when it felt completely hopeless and 6 weeks (3 months in my case) felt like forever in between tests etc. It really messes with your mood too!

The awesome people here helped me understand that it's a long process, which I really struggled with as I'm an immediate sort of person and always have been. I get the impression you are too.

I used to run and I could pick it up and stop so easily. If I wanted to lose some weight, again I could easily. Then this came along and I couldn't. You feel like its all out of your control but it will come good it just takes a long time. Im now exercising again, rarely have any symptoms and able to lose weight providing i keep the balance right. One day you'll look back and think "wow, was I really in that place".

The knowledge on here is phenomenal. Use it! 😊

Take care and you will get there and feel better than you have in ages!

Lucy

lucylovesgin profile image
lucylovesgin• in reply tolucylovesgin

Oh and also, exercising if you have low ferritin/iron is not advisable. I had a crazy low ferritin and my gp wouldn't let me exercise. I couldnt anyway, but I guess it depends on your levels.

Tryingherhardest profile image
Tryingherhardest• in reply tolucylovesgin

I just sound so stupid saying I don’t no results but I’ve made appointment for a new doctor in September so I’m making sure I write everything down and go through it all writing down all my answers xx

I’m also going to get private test If needed to get on track as you will understand I need fixed yesterday 😃

helvella profile image
helvellaAdministrator• in reply toTryingherhardest

Nothing stupid about it. We weren't born knowing that we need to get the actual results - I promise you! :-)

For so much of medicine, we really don't have to get involved in the detail. And, for much of my life, doctors were not exactly willing to tell patients. That has changed, and continues to change. Our access to information is far better. But we do need someone to point out that we need to ask.

I urge you not to write down results - ask for them to be printed. It is far too easy to make a mistake desperately trying to write them. In the UK at least, there should be no charge.

Tryingherhardest profile image
Tryingherhardest• in reply tohelvella

I got results today printed but only tsh and T4 but will defo get printed your right thanks xx

lucylovesgin profile image
lucylovesgin• in reply toTryingherhardest

Or you can request online access. Some surgeries offer this. From memory you need to request it and they will set you up with a username and password. I then had to further request all info and now have all my test results, consultations and prescriptions etc in one place. Lucy

Tryingherhardest profile image
Tryingherhardest• in reply tolucylovesgin

Thank you Lucy xxx

Feel like you no me already xxx

marigold22 profile image
marigold22

You've had brilliant advice from many members. I don't want to confuse you any more. The advice on this forum got me better, after 36 years of being left to rot by the doctors. I will tell you - finding any doctor who knows what they are talking about regarding thyroid, is like finding a needle in a haystack. You will be much wiser to follow advice on here than waste energy trying to find "a good doctor who knows about thyroid". In the end I vowed to treat all doctors as idiots, learn from the wise on here, and I did heal myself. Big hugs x

jankei profile image
jankei

Oh I so feel for you! I am just starting my journey and the hardest thing is finding the patience to wait and see if thyroxine will work for you. You want to try all the things they mention on this forum to make you feel well, but it is one step at a time! At least that is what I am telling myself! I am amazed at the knowledge and help all these good people give, the time they take to help and the patience they have. Hope to get my latest blood test this afternoon, and am pleased to say my doctor complied with my request for the vitamin tests recommend on here. So I will be back with my results and asking for advice later.

Tryingherhardest profile image
Tryingherhardest• in reply tojankei

Oh I feel for you also xx ye Patience is a problem !! 🙈xx

Hope all goes better with your results xx

jankei profile image
jankei

I should have said blood test results.

Morgansare profile image
Morgansare

Hi! I feel for you so much, I really struggled with energy for the first 6 months and I don't have small children. Family and friends in my world seem to disregard the condition as similar to have appendicitis, not much of an issue. I've tried to educate them but in the end I just stopped talking about how I was feeling. Everyone here is awesome with the numbers and really helped me understand what I needed to ask from my doctor, I'm on 125mg now and that suits, he wanted to leave me on 100. I used to go to the gym but I find that too exhausting, maybe give yourself a break and try yoga instead, muscle burns fat remember. I'm not sure if any of this helps but I so want to make you feel better. You will find a way of managing this and having a life but for me it was a bit of a lifestyle adjustment. Don't despair just keep going, much love Sarah xx

Tryingherhardest profile image
Tryingherhardest• in reply toMorgansare

Oh that’s exactly what it’s like with my family I want to totally bitch about it all and how just don’t understand but I’m not , I actually have an older daughter at 20 who left home then moved back with my mum but she actually said to me that I should hire in help if can’t cope ( asked her to change my bed as owed / owes me £100) lol xx oh and still waiting on my pennies being transferred 🙈😂xx if she had just changed the bed it would of been wiped 😂xx

Sweenco profile image
Sweenco

Personal trainer 3x a week! I can hardly manage to the shops and back 🤣

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