Different doctor, same old results.

[Kimethy]

After my last post, i tried another doctor explained everything that was going on and what tests i needed. He agreed to test (if a bit reluctantly) then told me to come back and se him.

Got the results back and a letter from the doctors to say i neeeded retesting in 6 weeks. I may have eeked because omg thats never happened before. Went to see doctor again today and given these results. Now is it my eyes or is there only tsh results again?

And the retest was for a rise in white blood cell count. But he said not to worry because its probably nothing.

Im still achey, my wrists are ridiculously sore most days (along with hands and knees and basically all my bendy bits oh and shoulder! The shoulder pain is 😑)

Im still feeling fatigued but the last few weeks have found it difficult to sleep? The dizziness seems to have calmed slightly, temp is still low, tongue is still swollen with the ridged edges. Brain fog is meh, i had to wash my hair twice this morning because i couldnt remember if i had washed the conditioner out! 🙈

[Carrie97]

Haven’t had tests in about 6-8 months but my last were T4 25 (10-25) tsh 0.01 (0.30-3.30) I’ll see about getting new blood done but my gp surgery likes to only test annually

[Kimethy in reply to Carrie97]

are you on medication?

ive not actually had a diagnosis , and im just going by my symptoms but its all a big struggle to get doctors or even the labs to listen

[SlowDragon Administrator]

You need both TPO and TG thyroid antibodies tested, plus FT3 and FT4

Also vitamin D and ferritin

For full Thyroid evaluation you need TSH, FT4, FT3 plus TPO and TG thyroid antibodies and also very important to test vitamin D, folate, ferritin and B12

Private tests are available. Thousands on here forced to do this as NHS often refuses to test FT3 or antibodies or vitamins

thyroiduk.org.uk/tuk/testin...

Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have money off offers.

All thyroid tests should ideally be done as early as possible in morning and fasting. This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, GP will be unaware)

Just vitamin D can test via NHS postal kit £29

vitamindtest.org.uk

If antibodies are high this is Hashimoto's, (also known by medics here in UK more commonly as autoimmune thyroid disease).

About 90% of all hypothyroidism in Uk is due to Hashimoto's. Low vitamins are especially common with Hashimoto's. Food intolerances are very common too, especially gluten. So it's important to get TPO and TG thyroid antibodies tested at least once .

Link about thyroid blood tests

thyroiduk.org/tuk/testing/t...

Link about antibodies and Hashimoto's

thyroiduk.org.uk/tuk/about_...

thyroiduk.org.uk/tuk/about_...

List of hypothyroid symptoms

thyroiduk.org.uk/tuk/about_...

[Angel_of_the_North]

Only TSH so useless, but TSH is a bit too high if you are on meds. Folate and B12 too low for optimal health, and ferritin could be a bit better. Looks like they are hoping that it is menopause. I'd try to get a cortisol test/short synacthen test to see if it flags up a potential pituitary problem, which might explain all those symptoms with reasonable TSH.

[Kimethy in reply to Angel_of_the_North]

Not on any medication apart from ferrous fumarate for the last couple of months. How would you raise folate and b12 (this is probably a stupid question but my brains dead today!)

They have tested a few times for menopause but its always came back fine.

Im going to google the cortisol/short synacthen test. Thanks for the reply 😊

[Angel_of_the_North in reply to Kimethy]

Low B12 and folate - I'd supplement with sublingual methylcobalamin for B12 and a good B vitamin complex containing methylfolate (not folic acid). If the B vitamins contain biotin you must stop for 3-5 days before a blood test for thyroid.

[Kimethy in reply to Angel_of_the_North]

Thanks!