TSH level: Can your TSH level go from 4 to 0.0... - Thyroid UK

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TSH level

Marionjessica profile image

Can your TSH level go from 4 to 0.01 without it affecting health/ feeling of well being? I have had an underactive thyroid for many years and take euthyrox 112 mg and cytomel 25mg recently reduced to 12.5 mg

I feel extremely tired..have problems with burning irritation of my eyes, bluured vision. I have a eye cream for night time from the doctor but it doesn't help. My vision is also bluured.

2 Replies
SlowDragon profile image

Just testing TSH is completely inadequate.

You need FT4 and FT3 tested plus both TPO and TG thyroid antibodies and vitamin D, folate, ferritin and B12

On cytomel TSH is nearly always suppressed, but that doesn't necessarily mean you are over medicated, your FT3 and/or FT4 could be too low

All thyroid tests should ideally be done as early as possible in morning and fasting. When on Levothyroxine, don't take in the 24 hours prior to test, delay and take straight after test. This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, GP will be unaware)

If also on T3, make sure to take last dose 12 hours prior to test

I have suffered from dry eyes very badly at times because of being hypothyroid - my eyes burned and stung badly at times. A young doctor at the Eye Hosptial in London when I lived there was finally able to tell me the cause. Can't remember the name of the ointment he put me onto but it had wool fat in it. It does make your eyes blurry when you first use it. None of the drops or gels worked.

As SlowDragon says, it is completely inadequate just testing TSH. I had thyroid surgery many years ago and have been on Thyroxine (currently taking Oroxine) for a long time. My TSH remains at around 0.01, even when my other test results change. Also as SlowDragon says, there are other tests you need to have in getting to the cause of your tiredness and a clear picture of your thyroid function. Good luck.

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