Radiation Induced Hypothyroidism - Advice Please

[WSimpson]

Hello, I'm new here and this is my first post.

Following radiotherapy treatment in 2016, I was diagnosed with Subclinical Hypothyroidism in April. I started on a level of 50mcg Levo and I am currently on 75mcg. My blood results have improved slightly, but my TSH is still near to 4 (range 0-4) and I still have lots of symptoms so think I need my dose increasing.

I have been told that 2 years post treatment is the usual time to develop thyroid issues. What I'd like to know is if this is going to get worse over time?

Has anyone else got experience of RIHT?

[DeeD123]

Someone far more knowledgable will hopefully jump in but going by tsh alone it looks like you need an increase. Have you got all your results for all latest test. If so I would post with ranges as it will be much easier for people to help. Never heard of the two year after rule. Sounds daft to me as we are all different and if you have no thyroid it follows you need replacement hormone. If no one answers post a new one with test results. Good luck. Xx

[WSimpson0 in reply to DeeD123]

Thank for the advice. I had blood tests last week and I get the results this Friday. I'll post the results then.

My radiotherapy for for Non-Hodgkins Lymphoma. I had tumours in my neck and the radiotherapy field unfortunately included my thyroid.

As it seems to have taken a while for the hypothyroidism to be diagnosed, I'm not sure if it is now just in a decline from damage and so may get worse.

[DeeD123 in reply to WSimpson0]

All I can say is if my tsh is where yours is I feel like I’m dead. Hardly able to function at 3 and my free T.S. go down to bottom. Definitely post your results when you get them. X