Still not getting through to my doctor- my latest bloods

[Beffymon]

As is repeated again and again here, I’m not getting through to my gp that I feel so unwell, and it’s only getting worse. I’m 24 but feel 84 and now I’m on the brink of having a break down and giving up. I’m struggling so much at my job (on my feet and running about all day) that I can no longer do anything at home, and I’m in so much pain daily that when I wake up I just want to cry. I’m on the AIP diet which has helped slightly, but I’m convinced that something else is going on and slipping under the wire. My last doctor stated that (although diagnosed at 7) my records stated congenital hypothyroidism and Hashimoto’s thyroiditis, so I am in desperate need of guidance as to my next doctors appointment. Any help would be absolutely greatly received. My results are: Serum TSH- 0.3, free T4- 14 and Serum antibodies- negative. I’ve also re-developed a goitre that hurts daily, along with sore throat and swollen glands on either side of my neck. The goitre is lumpy and this is a new symptom for me (goitre hasn’t been present since first diagnosed). Thankyou in advance

[Marz]

healthunlocked.com/thyroidu...

Have posted your last post and thread of a year ago when it was suggested you had some Private Testing done - and links were given. You then posted that your GP had decided to do lots of tests - so are the above results the ones you had done at that time ? A year is a long time in the history of a thyroid

What happened to the Private Testing and the suggested vitamin and mineral testing ? B12 - Folate - Ferritin and VitD need to be OPTIMAL and not bumping along the bottom for you to feel well and for your thyroid hormones to work well.

You are legally entitled to have copies of ALL your test results with ranges - so do ask for them and insist on them finding the ones prior to 2015 ( I think you mentioned somewhere they could not be found ) You can start to put the jig-saw pieces together - follow the advice given here and start making some progress to wellness.

Really want to be helpful but we need a little more information. Low B12 and VitD can make you feel dreadful and as your FT4 is low in range I am guessing your FT3 will be - hence the way you are feeling at the moment. There is so much support we can give the body ourselves with good nutrition - supplements and the right amount of thyroid hormones. How do you take your Levo ? Are you taking any other meds ? - supps ?

Your goitre needs an ultrasound - so do insist - this can also confirm Hashimotos ...

Hang in there and sort out the basics and the rest will fall in place in time

[SlowDragon Administrator]

What's the range on the FT4?

Result of 14 looks very low....should be towards top of range

How much Levothyroxine are you currently taking?

For full Thyroid evaluation you need TSH, FT4,

Also essential to test FT3 plus vitamin D, folate, ferritin and B12

Private tests are available. Thousands on here forced to do this as NHS often refuses to test FT3 or antibodies or vitamins

thyroiduk.org.uk/tuk/testin...

Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have money off offers.

All thyroid tests should ideally be done as early as possible in morning and fasting. When on Levothyroxine, don't take in the 24 hours prior to test, delay and take straight after. This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, GP will be unaware)

Low vitamins are especially common with Hashimoto's.

Food intolerances are very common too, especially gluten.

Are you on strictly gluten free diet or tried it?

Always take Levo on empty stomach and then nothing apart from water for at least an hour after. Many take early morning on waking, but it may be more convenient and possibly more effective taken at bedtime

verywell.com/should-i-take-...

Many people find Levothyroxine brands are not interchangeable. Once you find a brand that suits you, best to make sure to only get that one at each prescription. Watch out for brand change when dose is increased or at repeat prescription. Many patients do not get on well with Teva brand of Levothyroxine. Though it is the only one for lactose intolerant patients