Raised TSH no increase? : Hi all, I went to see... - Thyroid UK

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Raised TSH no increase?

Ch76 profile image
Ch76
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Hi all, I went to see my endo last week, wasn't impressed and left feeling disappointed and unheard as usual. Had my bloods done while I was there and just received an email telling me to remain on my current dose of T3, 20mcg twice a day. I've been on this dose four weeks when I had my bloods taken. Before that I was on 10mcg db but had an increase after my TSH spiked to 69.19. Then I looked at my results which were sent without ranges.

Recent TFT (19/07/18):Free T4 < 3.2, free T3 4.8, TSH 12.34.

If memory serves free T3 range should be between 3.5 and 6.5, blood taken at the same hospital. I can't see his reluctance to increase and actually feel he's being negligent.

I do remember him saying that T3 won't suppress my TSH, it was one of his many arguments of my retrying T4 and at that point I decided I was wasting my time.

I'm very concerned now as I now my GP will go by what the endo has instructed. I leave for a week's holiday tomorrow so need to get it sorted soon. I've been trying to find NICE guidelines for T3 only treatment or anything to argue with this endocrinologist because I think he'll dismiss my concerns.

Any advice gratefully received x

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Ch76
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Need lab ranges to make sense of the results, but with TSH that high it looks as though you are very undermedicated. I'm on T3 only but have central hypo so I can't say whether it lowers/suppresses TSH or not. I think most people with primary hypo find that it does - so endo is not being totally truthful.

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