I’m new here. My mum was diagnosed with Graves’ disease 2 weeks ago. However, prior to that she was diagnosed with hyperthyroidism. Has anyone experienced graves rage? Help please
Sorry, what is Grave's rage?
How was your mum diagnosed with Grave's? Did she have her antibodies tested?
No. The endo specialist did blood test. No result yet.
Do you know which antibodies he's testing?
Not that I know off.
Well don’t know about Graves Rage but I remember being pretty grouchy for a while - probably after I was diagnosed and given carbimazole (an anti thyroid drug) and before starting on levothyroxine which was added in as part of my block and replace treatment - you will find out what block and replace is if you google it.
Anyway, one day my husband and I were waiting for a park and ride bus, there were half a dozen older pensioners in the queue in front if me. The bus drew up, everyone got off and none of the pensioners got on. Eventually I asked the guy at the front of the queue and who was messing around with a mobile phone if he was ever actually going to get on the bus because if he didn’t get a move on the driver would just close the door and go off without us!
My husband couldn’t believe his ears, the guy looked at me and then he and his friends got on and as we got on behind him he muttered something about ‘people who couldn’t wait. ‘ I really didn’t care though.
I got very, very short tempered / intolerant / angry before my endocrinologist started me on levothyroxine as well as my carbimazole. In fact before I was diagnosed I felt as if I was developing Alzheimer’s or was even going out of my mind - I wasn’t and once treated I was fine.
Take a look at the link below and it might give you more of an idea of how your mum might be feeling. She might not look it but she is really quite ill and will more than likely be feeling absolutely dreadful. I know by the time I was diagnosed I was so tired I just wanted to sleep.
Unfortunately, yes. I assume you are speaking of the complete loss of control which is a step or ten up from being snappy and irritable! I had a meltdown because there was no hot water, and threw half of the contents of my kitchen out of the window. I was misdiagnosed with anxiety neurosis and was sent to a psychiatric unit, where I also had a meltdown and slammed a door so hard it fell off its hinges. When I was finally diagnosed it was a relief, because I knew what it was but nobody would listen.
Hi marram, that what I’m talking about them rage. My mum is going for mental health assessment on Monday. I’m hunting for as much information. I’ve research journal about Graves’ disease and delirium. As a 3rd year student nurse specialist endocrine doctor only listen to the sign and symptoms. I’ll keep striving for help. Thank you for sharing your experience.
Yes be armed with info but it turns out many people in the mental health arena actually know about thyroid problems and their effect on the brain and hopefully this one will too. It will be interesting to find out. Sometimes I think they are more aware than the general medics who still - after 40 years since my eventual Graves diagnosis (though could be Hashis as no diagnosis when hypo) seem to not understand symptoms. Good luck to you and your mother!
It’s from being hyperthyroid and Graves’! Don’t waste your time on the mental health assessment until the Graves’/hyperthyroidism is controlled. It won’t be accurate with high T4. It’s highly likely that her rage will subside when T4 is brought down. Mine did. I would not want inaccurate mental health notes in my file.
Thank you for your advice
I've heard of graves rage . You can turn from being quite calm to full blown anger in the snap of your fingers. I was put on citalapram to try and keep we calm as I was suffering anxiety as well. I can still get angry quite quickly but have learnt to control it more.
Please do explain to me how you manage your anxiety? As my mum have anxiety, phobia to get out the house and depression. Thank you in advance.
Have they put her on any medication for the thyroid ? Once that kicks in it will help with the rage. Wouldn't bother with assessment until the thyroid is treated. Hope she feels better soon
She’s been on carbinazole for 1 month now. Thank you so much.
Yes that comes with hyper/graves. The doctors dont understand it. They allwanna hand out pills. I had meltdowns to. Iam going thru someting medical right now and no one seems to get it. Good luck. I hope ur mom gets the right help and starts to feel better.
I also suffered from Graves' rage. It only got better months after I started medication. I would suddenly get angry over nothing, also because I got very hot due to the high heartrate. I was over emotional in general, would also burst into tears. Good luck with your mum.
Thank you. Now everything is getting clearer for me. Thanks.
How is your mum?
TSH ranges. Can I have graves with these results, and how can one diagnose graves. Thank you Val
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