Absolutely awful, is there anything I can do fu... - Thyroid UK

Thyroid UK

137,730 members161,516 posts

Absolutely awful, is there anything I can do further.

Peanut31 profile image
8 Replies

Morning

I’m currently on 100mcg of Levothyroxine, I’m due a blood test on Monday morning (8am).

Since Saturday my health has started to go downhill considerably.

Yesterday I left work early and today I’m in bed.

My symptoms are neck stiffness, freezing cold, and no energy what so ever, in fact just going to the toilet and I’m exhausted. Headache which I think is a tension one.

I’ve ordered some T3 and I’m waiting for it to arrive, I could up my dosage of Levothyroxine as I have enough, but I don’t think it’s wise as it will effect my blood results Monday?

No point going to the GP early? As he may insist on blood taken there and then and it will not be first thing without Levothyroxine so it will mess up my consistency of bloods taken.

Is there anything I can do? Or am I looking at this wrong, should I increase my Levothyroxine?

I feel so depressed.

Best Wishes

Peanut31

Written by
Peanut31 profile image
Peanut31
To view profiles and participate in discussions please or .
Read more about...
8 Replies
bantam12 profile image
bantam12

Could just be a virus, lots around right now.

Peanut31 profile image
Peanut31 in reply to bantam12

I didn’t think of that, thank you it could be.

Best Wishes

Peanut31

Naomi8 profile image
Naomi8

My husband points out I never go for long without being ill & with no energy.He is right.Hashimoto's auto-immune seems to leave me vulnerable to viruses,many so subtle symptom-wise.its hard to know if I'm reacting to a virus.

I think when my body reacts to defend me,I get symptoms & energy is the first to suffer.

Keep resting,resting,resting.Don't panic!

Peanut31 profile image
Peanut31 in reply to Naomi8

Thanks Naomi8

It’s so frustrating.

Best wishes

Peanut31

DippyDame profile image
DippyDame

Do you have any results from previous tests? You can ask surgery for copies - you are legally entitled to them. If so post them inc lab ranges, and someone will advise.

Peanut31 profile image
Peanut31 in reply to DippyDame

DippyDame

Members are advising me, but I’m going downhill fast, so I’m worried. I’m wondering if it is a virus?

I’ve posted my results as I get them and can access them on line.

I’ve got Hashimoto’s and I’m gluten free. Vitamin are absolutely fine as well.

Here is my total history of results so far from before on Levothyroxine to my current ones.

My next blood test is Monday to see what’s happening.

I’m in bed now and I have no energy at all.

Results below

Before Levothyroxine

TSH 12.2 (0.27-4.5)

Antibodies 160 (<34), had increased.

T3 4.12 (3.1-6.8)

T4 10.2 (11-23)

I was started on 50 mcg of Levothyroxine.

April results:

TSH 4.1 (0.27-4.5)

T3 4.51 (3.1-6.8)

T4 14.2 (11.0-23)

Increased to 75mcg of Levothyroxine

May results:

TSH 1.6 (0.27-4.5)

T3 4.58 (3.1-6.8)

T4 17.4 (11.0-23.0)

Now Upped to 100 mcg of Levothyroxine.

Best Wishes

Peanut31

DippyDame profile image
DippyDame

I'm reluctant to advise - not as knowledgeable as many here - but without doing any calculations I would hazard a guess that you are not converting T4 to the active T3 hormone.

Once you start levo the TSH becomes unimportant but as would be expected your T4 increased after the additions of levo. I would have thought your T3 level should also have increased if you were converting adequately....it would be better at top of range

Sounds like my experience, I felt increasingly worse until I had no energy reserves left and could barely function

. My GP diagnosed Fibro then CFS - never convinced I joined the forum and followed advice.....it's a long slow process and 6 months later I am improving, but not there yet.

I have a faulty Dio2 gene (only just discovered this) and don't convert T4/T3. I started to self medicate after I sourced T3 - again v closely following advice here.

My GP is supportive of my doing this.....most are not! Most know little about the thyroid.....the experts are here.

This is in haste so haven't looked at your profile but I suggest you read as many old posts about T3 as you feel able to and then start another post asking for advice.

Hope this quick ramble makes some sense ...have to go out......you can feel better. Stick with us!

Best...

DD

Peanut31 profile image
Peanut31 in reply to DippyDame

Thanks for your reply

I’ve ordered some T3 to try, and I’ve been reading Paul Robinson book.

When I mentioned converting T4 to T3 to my GP his reply was T4 converts to T3 and none of his patients have needed it.

So, with that attitude I thought I would order some T3 in case, I’m pleased I did.

Saturday and Sunday I started to go down hill fast and then this week oh my word, it’s so debilitating, I’m worn out going to the toilet.

The T3 can’t come soon enough and neither can my blood test on Monday.

I feel like I’ve got whiplash at the back of my neck and my head feels heavy, I’ve got tension headache and my muscles are so stiff.

Thank god for this forum.

Best wishes

Peanut31

You may also like...

Is there anything I can do to improve further?

my bloods I don't think a dose increase is appropriate. I'm also nervous that when my NHS bloods get

Can I do anything more?

dose from 100mcg to 125 then to 150mcg. Now been on higher dose for 7 weeks and had repeat bloods...

Is there anything I can do about my terrible hair loss?

Do I need further testing?

and a number of other syndromes and had my blood taken the other day. My results for TSH were off...

Back to feeling awful : < - do these blood tests mean anything?

Morning everyone, I have been doing well, feeling better than I had in years and then for no...