I am so angry, my GP just called and said I have to stop taking my Levo as after a practice meeting her seniors said I have within range readings and she shouldn't of given it to me. She has now referred me to an endocrinologist, who I am sure will laugh me out of the office as many on here before have been. I was feeling so positive, how dare they make a judgement on me without speaking to me or asking how I am feeling. I don't know what to do now, 6 wks for referral, I can buy smack on the streets easier than thyroid medication. I am genuinely lost and have no idea what to do, can I make a compliant demand to speak to the other doctors????
They won't take into account my medicheck readings only my NHS ones. I was feeling so positive that things were moving in the right direction.
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KerryHomer40
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Although I understand your anger, confusion over Dr varying opinion, I think the real positive is getting an endocrinologist refer.
I don't mean to offend, or minimise your suffering. Merely want to tell you, I did not see an endocrinologist for 25 years of hypothyroidism. I was treated by GP who utterly refused refer, even when my thyroid was in crises!
Dermatologist, private Dr London, got me diagnosed with thyroiditis and autoimmune crises. Though, I had to get a refer to endo via rheumatologist.
I hope 6 weeks speeds by for you and endorse helpful.
Thank you and a few people on a facebook thyroid group said the same, but what worries me is some people have been laughed out the office for have in range bloods and sent back to GP until they were worse. Suppose I will have to wait and see, most of the problem was my surgery won't accept the medicheck results. Just feels like one tired step forward and 2 back every time.
I know. It's very painful having to rely on Drs especially when they disagree best treatment.
As I said, I wouldn't minimise your experience at all.
Thyroid care and treatment, is sorely lacking.
When you find a really great Dr, hold on to them. However, keep researching. Once you understand how complex the world of thyroid care is, you will be able to know what suits you.
HU members will teach you how to help yourself despite Drs not helping you.
Try and read Dr Peatfield book How to Look After Your Thyroid. Also, Isabella Wentz - Google her, we all know what you are going through, these influential and qualified authors will help you find your feet.
Ask to speak to the Practice Manager. Explain your test results show your thyroid is in trouble and ask them to put it in writing why they have changed your medication, as it is not in line with current research. That should shake them! Also ask for your medical records. This can be interesting as the senior GP should have put down why she thinks you did not need medication. Arm yourself with the facts as they absolutely rely on patients being ignorant and never challenging their sometimes odd decisions.
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How dangerous is this. Doctor suddenly told me to stop taking my high dose thyroid replacement after 30+ years. 
It's all in my head!
They are reducing my medication - but I feel awful
Unsure of what this means
