Hashimoto not CFS! I was right!: So those of you... - Thyroid UK

Thyroid UK

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Hashimoto not CFS! I was right!

5 Replies

So those of you may have read my post a couple months ago lamenting being told to stop working etc because I obviously had Chronic Fatigue. After managing to convince the Dr to let me try a higher Thyroxine dose my tests are back. I’m now 1.56 T4 down from 2.17 and most crucially my antibodies came back at 566...

vindicated is an understatement. I’ve had a constructive chat with a different doctor today to discuss how I access better support plus an understanding that what I say I feel pants...I mean it!! Keep up the good fight chaps, positive vibes are what gets me through x

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5 Replies
Hashi-Monster profile image
Hashi-Monster

Good for you ... I was misdiagnosed and fobbed off 4 times until my TSH went to 18.5 only then did they diagnose Hashimoto

in reply to Hashi-Monster

I didnt my get any apologies for being made to feel like a nuisance hypochondriac but I’m grateful I got to this conclusion relatively speedily,

Hashi-Monster profile image
Hashi-Monster in reply to

Yes unfortunately it’s a hidden disease and because we look okay they don’t believe how awful we are feeling ... I thought I was going crazy and had nearly given up hope

in reply to Hashi-Monster

Honestly I’ve learnt to really love the support system I’ve built with my colleagues, partner and family because the health system has been marred with “procedure and protocol” that has made me feel like I’m needy, emotional and damaged and that I can’t possibly have a reason to be feeling sick. It’s degrading. I’m a go getter passionate person reduced to a whimpering wreck periodically due my own body attacking itself and previously no one believed me till an arbitrary test this month said it wasn’t “normal”... thank goodness for the mercy I had today.

SlowDragon profile image
SlowDragonAdministrator

Essential to test vitamin D, folate, ferritin and B12, extremely common to be too low when we have Hashimoto's

Ask for coeliac blood test too

Then seriously consider starting strictly gluten free diet regardless of the coeliac test result

amymyersmd.com/2017/02/3-im...

chriskresser.com/the-gluten...

thyroidpharmacist.com/artic...

scdlifestyle.com/2014/08/th...

drknews.com/changing-your-d...

thyroidpharmacist.com/artic...

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