Low T4 , hormones flat, no periods - doctor say... - Thyroid UK

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Low T4 , hormones flat, no periods - doctor says im normal, I cant interpret these results? Anyone able to help? X

Claudieg1993 profile image
8 Replies

Hi guys! I am new to this - have suspected hypothyroidism for a while now - can anyone tell me if these results might indicate that I have an underacrive thyroid? Merci x

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Claudieg1993
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SeasideSusie profile image
SeasideSusieRemembering

Claudieg1993

As a priority, you should take down this photo, resubmit it without your name and date of birth showing. Your post isn't locked to members of this community only so is easily found via a search engine. Identity theft is rife and your details are all that is needed. We can then look at your results when you resubmit your photo.

Claudieg1993 profile image
Claudieg1993 in reply to SeasideSusie

Thanks for pointing out - have resubmitted without details x

SeasideSusie profile image
SeasideSusieRemembering

Claudie

I am not diagnosing but you might be looking at Central Hypothyroidism where the problem lies with the pituitary (Secondary Hypothyroidism) or the hypothalamus (Tertiary Hypothyroidism). Central Hypothyroidism is where the TSH is either normal, low or slightly elevated and the FT4 is low.

Your GP can look at BMJ Best Practice for information - here is something you can read without needing to be subscribed bestpractice.bmj.com/topics... and another article which explains it ncbi.nlm.nih.gov/pmc/articl... You could do some more research, print out anything that may help and show your GP.

As Central Hypothyroidism isn't as common as Primary Hypothyroidism it's likely that your GP hasn't come across it before. You may need to be referred to an endocrinologist. If so then please make absolutely sure that it is a thyroid specialist that you see. Most endos are diabetes specialists and know little about the thyroid gland (they like to think they do and very often end up making us much more unwell that we were before seeing them). You can email Dionne at tukadmin@thyroiduk.org for the list of thyroid friendly endos. Then ask on the forum for feedback on any that you can get to. Then if your GP refers you, make sure it is to one recommended here. It's no guarantee that they will understand Central Hypothyroidism but it's better than seeing a diabetes specialist. You could also ask on the forum if anyone has been successful in getting a diagnosis of Central Hypothyroidism, possibly in your area which you'll have to mention of course.

You might want to delete your duplicate post, no point in having 2 posts exactly the same as it will cause confusion.

Claudieg1993 profile image
Claudieg1993 in reply to SeasideSusie

Thank you so much Susie, I am going to email Dionne immediately and ask for Thyroid friendly endos in London, I really appreciate your help. Will keep you posted. X

trelemorele profile image
trelemorele

Your doctor cannot read blood results.

You have low Lhasa

First page on Google

"If your LH levels are low, you will usually not be having your period. Because LH triggers ovulation, low levels of LH can prevent ovulation and thus pregnancy. Low levels of LH are common in women with eating disorders, female athlete triad, high levels of stress and disorders of the pituitary or hypothalamus."

And your t4 (as,you noticed) is low too.

Ask for endocrinologist referral to get all hormonal tests done. This doctor you're with now won't help you

Claudieg1993 profile image
Claudieg1993 in reply to trelemorele

Thank you so much, will contact the appropriate specialists right away. Appreciate the help xxx

Muffy profile image
Muffy

Your bloods should be drawn as early in the day as possible eg 8 - 8.30.

Your feee T4 is very low when comapred with yoru TSH. This, coupled with hypo symptoms indicates possible central hypothyroidism. GPs don't understand it and it needs an endo to diagnose. It means that the problem is with your pituitary gland or hypothalamus, not your thyroid and the fact that you have other hormones problems (no periods) also suggests that. Probably not a prolactinoma as prolactin is low, but your sex hormones weren't tested, just FSH and LH (which si a bit like only testing TSH. Ever had a head injury, whiplash or severe blood loss?

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