Weird fluttery feeling

[allieoli]

I have this sometimes but very rarely, it’s so hard to explain It’s a weird fluttery feeling, all over my body. It’s like a cross between heart palpitations and feeling light headed, but all over! I feel like I could either pass out or be sick.

I have an under active thyroid and anxiety/depression, so I’m on Levothyroxine and Venlafaxine.

Anyone know what this could be?

[Marz]

How are your levels of B12 - Folate - Ferritin and VitD - if they are LOW then you could experience the symptoms you mention. Also low mood is linked to low levels of nutrients - as mentioned above.

How much Levo are you taking ? Have you suffered anaemia ?

[allieoli in reply to Marz]

I don’t know what my levels are like! I’m on 100mg of Levo

[Marz in reply to allieoli]

You are legally entitled to have copies of all your results - and the ranges are important as labs do vary. How do you take your Levo ?

You need the B12 etc tested to see where you are as they are so important in helping the thyroid hormones to work in the body and for you to feel well.

Are you taking anything else apart from the Levo ? Do you have your results from when you were diagnosed ? Do you have Hashimotos ?

thyroiduk.org

The above website is the main one for this forum - where you can read and learn about the thyroid. Please come back and ask as many questions as you require ...

[SlowDragon Administrator in reply to allieoli]

First thing is, you will need to get hold of copies. You are legally entitled to printed copies of your own blood test results and the ranges.

UK GP practices are supposed to offer online access for blood test results. Ring and ask if this is available and apply to do so if possible, if it is you may need "enhanced access" to see blood results.

In reality many GP surgeries do not have blood test results online yet

Alternatively ring receptionist and request printed copies of results. Allow couple of days and then go and pick up. They can no longer charge for printing out, (rules changed after May 25th 2018)

You need most recent results and ranges for TSH, FT3 and FT4, plus have you also had thyroid antibodies tested

Also helpful if had vitamin D, folate, ferritin and B12 tested. Add results and ranges if you have them

Extremely unlikely that you will have had all these tests and NHS labs often refuse to do FT3 or antibodies, even if GP requests

Private tests are available.

thyroiduk.org.uk/tuk/testin...

Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have money off offers.

All thyroid tests should ideally be done as early as possible in morning and fasting. If on Levothyroxine, don't take in the 24 hours prior to test, delay and take straight after. This gives highest TSH, lowest FT4 and most consistent results. (Patient to patient tip, GP will be unaware)

If antibodies are high this is Hashimoto's, (also known by medics here in UK more commonly as autoimmune thyroid disease).

About 90% of all hypothyroidism in Uk is due to Hashimoto's. Low vitamins are especially common with Hashimoto's. Food intolerances are very common too, especially gluten. So it's important to get TPO and TG thyroid antibodies tested at least once .