Can anyone feel well with high tsh?

[Dee8686]

Sorry me again...

have been off thyroid hormone for 3 weeks due to the medichecks result and my consistently conflicting private and nhs blood tests!

Extreme fatigue and aches yet Temperature, bp and pulse all normal. Reflexes all good.

I am awaiting an mri scan to rule out or look into pituitary problems.

Question: can anyone/ has anyone heard of anyone not needing thyroid hormone with nhs results like mine should they be the ones that are correct?

Nb: these reaukts were when I was taking 2 x 5mcg t3.

[greygoose]

It's not the TSH that makes you feel anything. So, I guess the answer to that has to be yes, providing the Frees are in the right place. It's T3 that causes symptoms when it's too high or too low.

Your medicheck result for FT3 is absolutely insane! You didn't take your T3 before the blood draw, did you?

[Dee8686 in reply to greygoose]

No I didn’t...

I’ve been down this road but there is nothing we can think of to explain the descrepencies. Fasting-

Same time- no thyroid hormone- no biotin- blood draw by nurse.

24 hours apart.

If my nhs result is the correct one though, I need more t3, right? If private one is correct, hopefully pituitary problem will be highlighted when I’ve had the mri.

I am so far proving to be a real

Puzzle to everyone 😞

Any help/ advice suggestions Please comment!!

[greygoose in reply to Dee8686]

Well, you do have Hashi's, according to both tests, so that might have something to do with it - but that's really grabbing at straws! But, you're certainly a puzzle to me. I've never seen anything like it.

Yes, if the NHS one is correct, you do need a little more T3. I think you have to go by how you feel, and try increasing and see how it goes.

[Dee8686 in reply to greygoose]

Again - IF the nhs one is correct, can the result reflect how poorly and fatigued I feel?

Same

With the private result really.

Would you say it justifies why I feel so unwell?

No energy, fatigue, weakness.

[greygoose in reply to Dee8686]

The private tests don't justify anything, because they don't make any sense. But, in the NHS test, your FT3 is only just mid-range, whereas most people need it up the top of the range to feel well. So, I would say, yes.

[Dee8686 in reply to greygoose]

And thank you gg as ever x

[greygoose in reply to Dee8686]

You're welcome.

[Dee8686 in reply to greygoose]

How about consistent temperatures etc though? (Sorry still talking!)

Dr goes by temps

And reflexes which he says are very good. Could I still need more thyroid hormone but have good temps etc!?

[greygoose in reply to Dee8686]

I don't think temperatures are an absolute guide. And, reflexes would depend on how long you've been hypo. So, how long has this been going on?

[Dee8686 in reply to greygoose]

Been bad for almost 3 years.

On thyroid hormone 25mcg for 10 years until

Feb x

[greygoose in reply to Dee8686]

Why such a low dose?

[Dee8686 in reply to greygoose]

I was on 25mcg for

10 years and all tests came back as ‘normal’ from gp. I never questioned it until

I became ill 3 years ago and saw an endo who told

Me it wasn’t my thyroid causing probs and stay on 25mcg.

Trusted his opinion.

January this year I looked into thyroid again and I found this site, so I knew a tsh of

4.1 on 25mcg was incorrect and could be the reasons for my symptoms. Tests have been a problem since then really, trying to find a reliable

One that supports how I feel.

That’s my story! X oh if

Only I had found this site when I was a little better than I am now!

[Dee8686 in reply to Dee8686]

In addition- the doctor

I was seeing since feb this year has been going by the private tests. He last emailed me telling me to

Refer myself to an ME clinic,

Despite everything.

[greygoose in reply to Dee8686]

Well, whatever you do, don't do that!

I'm wondering if such a long time on too low a dose, hasn't had something to do with skewing your blood tests. Don't know if that's possible, but just a hunch.

[Dee8686 in reply to greygoose]

Thank you.

Am

Doing another test tmw...

Let’s see what that throws up!

[Dee8686 in reply to greygoose]

Going by my nhs ones- (just trying both scenarios!)

Both my frees are below where they should be. They should both be in the upper quarter of their ranges yes? And my t3 isn’t even half way. X

[greygoose in reply to Dee8686]

Exactly.

[diogenes Remembering]

Maybe the Medichecks or NHS tests use something in their test schedules that is interfered with by your blood. Different test sources often have different technical bases, and this can cause clashes between results. Just to be more sure, could you get a Medichecks total T3 and total T4? If these compare with the FT4 and FT3 as regards position in or out of range then we could say its an arefact issue. I note the antibody tests agreed much better.

[Dee8686 in reply to diogenes]

No the nhs test came back negative for

Antibodies.

The teat you see at the top is a previous cut off

From a medicjecks result x

[Dee8686 in reply to Dee8686]

Thank you xx