Interesting thread on Mumsnet

[Lora7]

mumsnet.com/Talk/am_i_being...

[helvella Administrator Thyroid UK]

There is a guideline which requests that you let people know why they might wish to follow a link and what they will find there. Please add a sentence to explain.

If you do not, some people will just go straight past and not look even though they might have been interested. Others will follow and look and then wonder why they wasted their time and bandwidth.

14. If you post a link, please at least explain briefly what people can expect to find if they follow the link. Links without such an introduction/explanation may be deleted.

healthunlocked.com/thyroidu...

[Judithdalston]

That's good, sounds like some of these women probably come to this forum too. Perhaps anyone who is a Mumsnet member could put a post on to this discussion to contact their MPs, especially re Vince Cable's debate next week, and T3 problems ( lack of testing, lack of prescriptions and cost to NHS) forcing many to go private or /and get medication from abroad.

Poor lonely voice of GP - I hope she learns something from it!

[humanbean]

There are some quite horrific anecdotes and some comments which are baffling on that link.

1) Thu 10-May-18 22:27:50 Patient with previously treated thyroid cancer :

And I was also told the treatment that I was given when i had the cancer was wrong, as I shouldn't be kept over active, I should be under active.

2) Thu 10-May-18 23:14:58

Also have been reading that many experts are suggesting that some people are medicated too soon.

3) Tue 15-May-18 07:21:53 Same patient as in number 1 above :

The endo I saw a couple of months ago couldn't have been less interested. He dismissed my symptoms as menopause (funny how they have all disappeared since upping my dose) and was more concerned to tell me that the treatment I had received 20+ years ago was not the way they do it now and I have to be weaned down to as low a dose as possible, even if I have horrific side effects. Wearing a jumper in 80 degree heat? Perfectly normal. Permanently exhausted? Its my age. Losing hair, unable to grow hair, eyebrows vanishing, dry skin and eyes? Normal.

[Rmichelle in reply to humanbean]

I agree- i think you cannot go wrong with tuk.😊😊

[Fruitandnutcase]

I had to laugh at Dr Mintychoc 1’s response (see below) in amongst all the other sad tales of the type we read on here - but it says it all really!

“As a GP of 20+ years I find the ill-informed conspiracy theories in this thread really alarming.

It’s also worrying that people are considering buying thyroxine themselves. Are you aware of thyroxtocosis, atrial fibrillation etc?

Words fail me, they really do.”

[SilverAvocado in reply to Fruitandnutcase]

I always find it alarming when they bring out the scare stories and bogeymen of what will happen to you if you aren't monitored by your GP.

But then we hear shocking stories every day of huge negligence in that monitoring!