Help needed: I’m off to to the docs this morning... - Thyroid UK

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Help needed

Ruthdobson profile image
11 Replies

I’m off to to the docs this morning to show her these results! My TPOAb looks ok (I think!) but my TGAb is very high. So looks like I have Hashimotos 😞 Any thing I could ask her? Had two miscarriages already and really want another baby.

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Ruthdobson profile image
Ruthdobson
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11 Replies
Moiseym profile image
Moiseym

I have had my results back from private blood tests this morning too and mine are:

TSH 1.67

Free Thyroxine 15

Total Thyroxine 89.6

Free T3 4.1

Reverse T3 23

Thyroglobulin AB 552 (should be 0-115!)

Thyroid Peroxidase AB 16.8

Should I see my GP re the massively raised TG Ab?

I have pretty much all the symptoms of hypothyroidism.

SlowDragon profile image
SlowDragonAdministrator in reply toMoiseym

See my reply to Ruthdobson below

B12jab profile image
B12jab in reply toMoiseym

Hi hope you are well what was the outcome of your high Tgb antibodies? I have the same and I’m so so x

greygoose profile image
greygoose

Your thyroid hormone levels are very good. And it's unlikely that your GP will even know what the high antibodies mean, let alone do anything about it. So, don't be too disappointed if she just shrugs it off.

Moiseym profile image
Moiseym in reply togreygoose

What do you suggest we do greygoose? Does is need medical attention or not?

greygoose profile image
greygoose in reply toMoiseym

Medical attention, no, I don't think there's anything they can do. Your thyroid hormone levels at this point are good. You don't need thyroid hormone replacement, which is about the only thing they will do.

The best thing you can do is just keep an eye on them, because at some point, they could drop.

However, you could try going 100% gluten-free, to see if that lowers antibodies.

Ruthdobson profile image
Ruthdobson

Hey I was diagnosed with hypothyroidism back in 2016 and taking levothyroxine has clearly got that under control. Would you say from my results I have hashimotos? You were right- the GP couldn’t answer any of my questions but luckily I’ve got an endocrinologist meeting in a couple of weeks. Maybe he will be able to shed more light 🤞🏼🤞🏼

SlowDragon profile image
SlowDragonAdministrator

NHS is reluctant to diagnose Hashimoto's (they will call it autoimmune thyroid disease) just on high TG antibodies

They only really consider high TPO for diagnosis of autoimmune thyroid disease, as high TG can be due to other things

healthline.com/health/antit...

What about vitamin D, folate, ferritin and B12 levels. Have you had these tested? Are you supplementing? If so what?

Improving vitamins to be optimal, especially B12 and folate if TTC

Are you on strictly gluten free diet? If not that may help as well

Ask for coeliac blood test before changing

Avoiding absolutely all soya and soya lecithin too

Flouride free toothpaste too

Endocrinologists are usually disinterested in diet, gut, gluten or vitamins

Your FT3 is low, improving vitamins and gluten free may help

Selenium supplements can help improve conversion too

Vitamin C to support adrenals

Thyroid Uk has list of recommended thyroid specialists. Standard Diabetes specialist will probably give you the brush off

Ruthdobson profile image
Ruthdobson in reply toSlowDragon

Yeah I’m taking a good prenatal vitamin which has folate rather than folic. I take semlium, every day my vitimin d was 69 rather than the preferred 75. Ferritin was fine. I’ve just started to look into gluten free today and going to give it a go for a month and see what happens. The endocrinologist I’m seeing in two weeks has been highly recommended and he specialises in fertility so very keen to see him and see what he says. I don’t take vit c or b12 so maybe I need to look into that. I’m up early every morning.

SlowDragon profile image
SlowDragonAdministrator in reply toRuthdobson

Vitamin D better around 100nmol

B12 is extremely important for pregnancy too, perhaps a good vitamin B complex

Ruthdobson profile image
Ruthdobson in reply toSlowDragon

I’ve just looked at prenatal.. Vit B12 is in at 10 meg and vit C is 85mg. Vit d3 is 800 IU.. think I need to increase any?

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