Oedema: Anyone had any luck with getting rid of... - Thyroid UK

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Oedema

Joanneconnor profile image
34 Replies

Anyone had any luck with getting rid of any oedema, and what was it you took that helped?

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Joanneconnor profile image
Joanneconnor
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34 Replies
greygoose profile image
greygoose

Turmeric helped.

Joanneconnor profile image
Joanneconnor in reply togreygoose

Tried that, no different, docs keep saying I need to be optimal, but I’ve been all over the ranges and oedema still here 😞

netgrouchy profile image
netgrouchy in reply toJoanneconnor

Joanneconnor

How Is your Vit D3 intake? No expert but surprisingly after a few days on 1--a-day Vit D3 IU4000 my swollen legs/feet were well on their way to 'normal'. However, the arms are not soooo lucky and once in a while, my feet are swollen for a few hours.

Feel for you!

Joanneconnor profile image
Joanneconnor in reply tonetgrouchy

I’ve had a couple of booster doses of vit d no change 😞

netgrouchy profile image
netgrouchy in reply toJoanneconnor

Sorry!!! I've stayed on the Vit D3 for the past 3 months. Hypothyroidism is surely a downer for sooooo many of us!

Joanneconnor profile image
Joanneconnor in reply tonetgrouchy

I have also took my own for about 4months on 4000 still no difference

netgrouchy profile image
netgrouchy in reply toJoanneconnor

Noooo..... Shame. Maybe I'm kidding myself though I feel a marked difference from the swollen feet/legs.........now morphed through to the knees and the pain is indescribable! Extra weight creates all sorts of issues. Poor knees are crying out for help with the weight.

Let us remain positive!

Boohbette17 profile image
Boohbette17 in reply toJoanneconnor

Have you tried increasing magnesium intake in green leafy veggies and/or a supplement? or spray?BTW I use compression stockings year round for my legs

rnareset.com/products/remag...

PS found the article

drcarolyndean.com/2015/11/d...

netgrouchy profile image
netgrouchy in reply toBoohbette17

Boohbette17

Do the stockings prevent or merely mask? Are they like full tights or only up to your knees?

Boohbette17 profile image
Boohbette17 in reply tonetgrouchy

Hi Netgrouchy, good questions! First which kind to wear--heavens , I wish I could do knee but I use & actually recommend full tights. I have bad varicose veins thats why never to knee, last year I tripped & hurt my knee so bad ( but no break - Thank God) and wrapping the knee was horrible trouble as I have a thick nasty bulging vein there. I had 2 bilataeral vein ligations in my 30's ( Im 50) and they're back. Its said to be in part a vitC idiffeciency issue. IA few months ago , was afraid but tried eating different foods w/C , supplement w C & Hesperidin. I noticed improvement w all three being used for my veins but Im terribly inconsistent ( a shame I know) HOWEVER its easy to use the support hose , they push up all fuid & allieviate sweling , tiredness etc. They are at first unconfirtable as its a struggle to ger on. I started in 2013 & now can wear them year round & Im not half as tired as I was.

I honestly dont think they "prevent or mask" but no doubt your poor leg veins & lymph system get held up to do their job as we go about the day. Just NEVER lay with then on as your blood pressure will be higher by default when you are flat

They are a worthwhile investment 🤗

netgrouchy profile image
netgrouchy in reply toBoohbette17

Thank you kindly Boobette17 for a comprehensive response. I am happy for you that you've had some relief especially with the BVLs. Guess I will wait until I'm back in the UK in a few months to attempt them...

Have had a difficult lifestyle change over the past 22 months which reduced physical activity after a lifetime of being on the go. Weight piled on and knees now seem to be in an arthritic stage. Oedema seems to be my shadow!

Best wishes!

N

Boohbette17 profile image
Boohbette17 in reply tonetgrouchy

You're welcome Netgrouchy 🙂 I hope you get to feeling better & soon! Safe travels as well 🌸💓

Joanneconnor profile image
Joanneconnor in reply tonetgrouchy

They do nothing for me, tried them ones to the knee

netgrouchy profile image
netgrouchy in reply toJoanneconnor

Thank God, there are so many choices out there because we know there will never be a solution to any condition which will suit ALL of us.

x

Hypopotamus profile image
Hypopotamus

Only had it with thyroxine. With NDT I have no problem.

Joanneconnor profile image
Joanneconnor in reply toHypopotamus

I’ve been on NDT now for 1 1/2 years no difference

Joanneconnor profile image
Joanneconnor

It’s non pitting oedema, it’s been there ever since I got pregnant, it doesn’t go up and down it’s the same all the time it’s permanent

Marz profile image
Marz in reply toJoanneconnor

... and your FT3 level is ?

Joanneconnor profile image
Joanneconnor in reply toMarz

I’ve been to from the bottom of the range right through to the top and back down again 6.5 at the mo

Marz profile image
Marz in reply toJoanneconnor

... sounds as if you are towards the top of the range now. Are you ? How long have you been there ? I always suffered with swollen ankles/lower legs before diagnosis and for a short time afterwards - when flying or sitting too long when eating out !

Joanneconnor profile image
Joanneconnor in reply toMarz

It’s not swelling that comes and goes it in the tissue never changes Pretibial oedema think it’s called

Joanneconnor profile image
Joanneconnor in reply toJoanneconnor

Sorry Marx, I was in 6.5 in January they made me reduce my dose and I’m now 3.8

Marz profile image
Marz in reply toJoanneconnor

Stabilising the T3 should help ...

Joanneconnor profile image
Joanneconnor in reply toMarz

Ok I have more bloods being done next Monday so I’m hoping they will be better as both are low

Marz profile image
Marz in reply toJoanneconnor

Fingers crossed 😊

HLAB35 profile image
HLAB35

A fasting glucose test may be worth doing (to consider insulin resistance - pretty common in hypos especially if you've ever had PCOS symptoms).

Epsom Salts (Magnesium) are good. I've read that apple cider vinegar can help and it would also make sense that spices like turmeric and ginger (I have a lot of both anyway) help too.

Joanneconnor profile image
Joanneconnor in reply toHLAB35

I’ve had all the tests you can think of all come back normal, although my twin was diagnosed 6 months ago with LADA diabetes I use Epsom salts occasionally and also eat the vinegar and spices you suggest anyway 😕

HLAB35 profile image
HLAB35 in reply toJoanneconnor

If your twin has Type 1 they'll have G.A.D antibodies as well as other symptoms. Presumably the doctors have checked for those in you as well.

Joanneconnor profile image
Joanneconnor in reply toHLAB35

Had all blood taken today and synachen test, but I didn't feel any change once they gave me it, only stomach pains

HLAB35 profile image
HLAB35 in reply toJoanneconnor

Doesn't surprise me about the synacthen test. It's worth doing if they suspect Addison's though.

mistydog profile image
mistydog

I started on thyroid-s, didn't seem to do much although I felt better (after a month of headaches at the beginning). I changed to Thiroyd, didn't feel any better, so went back to the thyroid-s and it was like a lightbulb. Everyone kept saying I'd lost weight although I hadn't much, but my face was slimmer, I had cheekbones! I've had to start again but I will get there.

Joanneconnor profile image
Joanneconnor in reply tomistydog

I was on thyroid s for about a year, felt loads better but still had oedema, I’m now in thiroyd and feel even better I actually feel a normal temp most of the time, skin’s not grey anymore and skin is soft again but still have oedema but it’s only been 6 weeks so I’m hopeful

sunsetalley profile image
sunsetalley

Vitamin C reduces edema...try to eat more vitamin C rich fruits like pineapple, It's really helpful...

PaulB profile image
PaulB

Hi

Yes, low prophylactic dose of antihistamine as well as other conditions being balanced out.

PM me if you want to chat

Paul

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