Blood celiac test

[Danielj1]

Much talk on these threads over the risks of gluten to hashi recovery.

I took the celiac tests and passed - has anyone else here taken these tests and if so. Changed anything as a result.

Thanks

[Cooper27]

Around 5% of hashi's sufferers are coeliac, but around 75% benefit from a gluten free diet, the only way to tell is to try a period without gluten, then try a small amount to see if it sets off symptoms.

[Danielj1 in reply to Cooper27]

Agreed -so no real point to it at all then ...

[Danielj1 in reply to Danielj1]

When I started on these boards many months back I stuck to a full gluten free and lapsed subsequently - as of a week ago I have gone gluten free again. It still surprises me what an incredibly negative impact gluten has.

[Cooper27 in reply to Danielj1]

I think it's useful to have a diagnosis - people take you a touch more seriously when you explain you can't have gluten, a bit less of the eye rolling!

The thing is, if you didn't have gluten in your diet for a long time before the test, you may also get a false negative for coeliac, so still be wary about cross-contamination - buy a new toaster, avoid things that say "may contain", keep gluten flour in a separate cupboard from GF flour.

[Danielj1 in reply to Cooper27]

Cooper, thanks.

Question - do you think removing gluten can reduce tsh levels if too high ?

[Cooper27 in reply to Danielj1]

Sorry, I don't know. The idea is to reduce thyroid antibodies, and reduce the attack on the thyroid gland, which I think can reduce the amount of medication you need (i guess that would suggest TSH levels will reduce, but I am not an expert!)

[humanbean]

I have been tested with blood tests for coeliac disease, an endoscopy, and biopsies from my gut during the endoscopy. All came back negative for coeliac.

A few years after testing I decided to go gluten-free as an experiment. It was a huge success for me - I got benefits within a week. I have accidentally eaten gluten since going g-f and have regretted it - a lot! I've been g-f for over three years now, and I won't go back to eating gluten again.

[teenarocks in reply to humanbean]

When you have accidently eaten gluten and regretted it what were your symptoms?

[humanbean in reply to teenarocks]

About 24 hours after I've eaten gluten I develop sudden extreme bad depression and/or I develop the most horrendous anger and bad mood. In each case there is no obvious reason for it. I stay severely depressed and/or bad tempered for 2 or 3 days.

Another problem brought on by gluten is poor balance. I have good reason to believe that I suffer from gluten ataxia :

en.wikipedia.org/wiki/Ataxi...

[Danielj1 in reply to humanbean]

Effects sleep patterns I honestly believe - also seems much easier to keep to a certain weight once gluten removed - I wonder if bread is the real problem rather than just gluten?

[Marz]

Testing for Coeliac needs to be more in depth than the current NHS testing - when many results give false negatives.

Look at Regenerus Labs .... Cyrex testing from the US transferred over to Regenerus in the UK I believe ...

[SlowDragon Administrator]

I had two negative Coeliac blood tests, twenty years apart.

Endoscopy 2 years ago just after 2nd negative blood test. The biopsy suggested I was Coeliac, as result sent for DNA tests. DNA test said probably not Coeliac

So because I had full investigation I have official recognition that I am gluten intolerant.....but might be coeliac!!

Just a pity I didn't go strictly gluten free after first negative coeliac blood test.

No forum around then and Medics never mentioned gluten free might help ......they still don't!!

[Danielj1 in reply to SlowDragon]

I get your point - thank you.

As ever things are not what they seem on the surface!