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Thyroid UK
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Swollen glands with Hashmoto's

Hi, does anyone know if a hashimoto's flare can cause your other glands in the neck and armpits to become enlarged? I keep getting these episodes, and when I do, it's accompanied by all over aching, like the flu without the cold symptoms (ie snotty nose etc) and very tired with it too x

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I get all these with my hashis flare apart from the armpits, my symptons usually last anything from a day to 3 days-sometimes its hard to tell whether i have actually caught a virus! Happy days hey!!😊😊

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Yes mine comes and goes, which makes it really difficult to get checked, because by the time you've got a GP appointment, it's gone again :/ Yeah happy days indeed. 😉😊 xx

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Hi

I’ve got Hashimoto’s and my glands in my neck become enlarged definitely, this also triggers off extreme neck stiffness as well.

Best wishes

Peanut31

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Yes I noticed my neck was stiff too. It's horrible isn't. xx

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Yes awful it doesn’t matter how many massage I have or put an ice pack, heat pack etc it doesn’t help.

It comes and goes.

Are you on Levothyroxine?

I’m on my 15th day now on 50mcg as when I was diagnosed with Hashimoto’s by a private Endocrinologist, he said no medication would help.

My symptoms got worse and I went to the GP.

Bloods were taken and antibodies had increased despite going gluten and dairy free, and my TSH was 12.2 and other thyroid results out of range too.

My GP was very cross with the Endocrinologist that I had been left.

Anyway that’s when I went on Levothyroxine it has stopped the neck stiffness.

I’m due for an increase soon as I’m sooooo ratty and angry all the time, I know it’s not the right dose. Still early days though.

Best wishes

Peanut31

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I'm so sorry you've had all this, but pleased you are now on treatment. My GP won't treat until I've seen the endocrinologist, and am still waiting for that. My TgAb was 72 (range <40). This was around 8 -9 months ago, so don't know what it is now, but I certainly feel worse, so assuming the antibodies ad / or the other thyroid levels are worse. Apart from the TgAb being raised, everything else was in range, although my TSH was at the high end of range, so if that's still the same, they probably won't treat me yet :( Be glad when I can start treatment though and hopefully I'll start feeling better. I really hope the medication continues to help your neck stiffness, and hope it starts helping your other symptoms too, with the increase. xxx

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Normally NHS will not prescribe anything until your TSH is 10 or over. They only concentrate on TSH as well.

When you say everything was in range was that what you have been told?, or have you a copy of your test results in the the laboratory ranges?

The Endocrinologist might not be any good either, my wasn’t and I was self funding.

Many people on here now self medicate with NDT as there GP are not experienced enough and Endocrinologist useless.

You may have to pay to have private bloods, blue horizon and medi checks do this. Make sure your vitamin levels are ok, Vitamin D, and iron especially.

Best wishes

Peanut31

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I had to be tested privately, (Genova kit) as the gp wouldn't test antibodies, because my tsh was in range :/ Annoying that they only rely on tsh ranges. When my tsh was tested at the GP, it was 0.9. When I paid for private tests I got the full thyroid check including antibodies. My tsh had risen by 1.1 in just two months, from when the GP had tested. Both labs had the same tsh range. So I have a copy of all my results, and posted them on here a short while back. I was told that my elevated TgAb meant Hashimoto's and was told that the tsh levels indicated my thyroid was struggling, although within range, and that my elevated t3 (high end of normal) indicated infiltrations. Please forgive me if I've got it all wrong, but that was my understanding of what was explained to me. I'd be interested to check my levels again now to see if they've changed as I'm feeling worse, but either have to save my pennies, or wait for the endocrinology appointment. However my hopes aren't very high after all I've heard from so many people about endocrinology :/ What is NDT? I know nothing about all this, other that what I've been told on here, so am learning little bits all the time. Xx

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Hey peanut so glad someone has given you levo, sure you will be ok in near future. I think this neck thing is a hashi and graves symptom. Boo.😐😐

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Absolutely! I get swollen glands in my neck, jaw, and armpit. Make sure you are getting enough sleep. I notice it’s worse if I’m run down. I hope you feel better soon! God Bless you!

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Yes, I'm definitely worse when I'm tired, or stressed too. Thank you. I hope you feel better soon too, and God bless you too 😊 xx

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I had TT . I have experienced the same symptoms with swollen glands and flu like aches and pains . I raised my NDT levels and lowered my Levo and it definitely helped . It must be the T3 in the NDT that helped .

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I've heard a few people say that T3 seems to help the most. Xx

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Sadienerin

I think there is something to it . I know from my own experience of late that the T3 from the NDT helped me . T3 is so important for thyroid patients and more that don't convert well from T4 to T3 . Either synthetic T3 or T3 from NDT .

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Sadienerin I know this post is a few months old but wondering if you found any relief or were able to get your meds right. I have dealt with flu-like symptoms on and off for going on a year we have tweaked meds a couple times and I just recently found a wonderful integrative doctor Who found a reverse T3 problem so going to tweak even more. We also are going to look at absorption Maybe my cells just aren't absorbing the medicine right. Would love to hear if you made any progress!

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