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Thyroid UK
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Hi,I have never done this before,so may make mistakes,sorry.I have Hashimotos,am on 50 mcg of Levothyroxine,being told my bloods are within the normal range but not happy.I have noticed that when I have a busy day and am very active,I immediately suffer from a high temperature and very sore swollen glands in my throat/neck area.My thyroid gland is not swollen,at the front of my neck.I suspect my immune system is over-reacting in some way but no Doctors I have raised this with will take action.I am now suffering weekly from this problem.I would be a very unreliable employee if I worked.My last bout lasted 5 weeks.Paracetamol has stopped working.Any ideas?No-one is listening to me and I feel old and awful.Paula

6 Replies

Hi Paula, I think I have hashi's and am very new to this, I am flutuating between hypo and hyper.

My glands are swollen, throat is sore and I keep finding lumps in my neck. I cannot tolerate any more than 25mcg of Levothyroxine but have to half the tablet and have it twice a day.

Am struggling to get doctors to understand how poorly I feel, am hardly sleeping at night but could happily sleep during the day.

I feel exactly the same as you and that no one is listening.



Hi Sarah,

what a relief to find someone suffering with similar symptoms but I would love to know what is actually going on.I,too feel awful,but am always told how well I look in the GP's surgery and that I can't really be that ill!

I have lumps in my neck,like golf balls.It is now almost permanent.I am returning once again to see my GP this Monday but I know I will get the usual run around.

Last time I was told to go away and eat healthily and get plenty of excercise.A lot of good that did.

Thanks for your reply.This is the first time I have spoken to someone with Hashi's,who has the same swollen glands problem.

Merry Christmas,xx


Hi Paula, what a journey this is. All I want is for some doctor to listen to me and not keep trying to fob me off.

I feel so low and it is so unlike me.

My neck is very lumpy, throat always sore. What do we have to do to get sorted. In sheer desperation I am seeing a private endo on Monday, hopefully he will listen to me and get me sorted.

Happy Christmas to you to.



Hi Both

Just to let you know you can search for hasimotos on the tags - here's one


Jane x (someone listening)


Thanks Jane, much appreciated.



Hello Paula

I too have swollen neck glands, so much so that I look in the mirror and see a 'bull frog' looking back! I also find that my ears are blocked - especially in the morning. Something else to discuss on next visit to GP - will compare notes?



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