Thyroid UK
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Feeling crappy

Hi all I’m new to this forum but keen to get your opinions and advice....

I was diagnosed with an under active thryoid 25 years ago in my late teens having pestered the doctors to keep testing my symptoms.

As the years have progressed my dosage has slowly increased to 275mcg if Levothyroxine. It’s been at that level for a good few years now and all been as well as it can be! I’m not a thin person and struggle with my weight and low mood. However having moved to a new town with my husband last year I am now under a new doctor who has over the past 8 months deceased my dosage as he says my blood tests show I am being over diagnosed?!? I am now on 225mcg which isn’t much difference but I feel terrible! I am constantly tired, no energy, feel very low, not eating much but feel full all the time, when I brush my hair I end up with clumps in the brush, particularly when it’s wet and all my finger nails are breaking!

I have another blood test in a few weeks time and am dreading the results because I don’t feel the doctor is prescribing me the correct dosage. How can I be on a level for years and it stay five and then he changes it everytime I’ve had a blood test! Feel like I’m good backwards and feel if my dosage is wrong it’s going to take my body a while to get back into its ‘normal’ rythum.....

Has this happened to any one else? Any advice?

Thank you

7 Replies
oldestnewest

If you post your results we can try and help. If you've got results from when dose changes were made, please post them, say what you dose you were on and what the dose was changed to. Please include the reference ranges as well as the results, ranges vary from lab to lab so we need your lab's range to interpret your results.

Ideally we need

TSH

FT4

FT3

And thyroid antibodies if ever tested.

Results should look something like

TSH: 2.5 (0.2-4.2)

Also, if you've had vitamins and minerals tested please also include those:

Vit D

B12

Folate

Ferritin

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Ok thanks. I’ll speak with docs and get my results. Will be in touch

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Just ask at reception for a print out, easier than a conversation with a GP. Don't accept hand written or verbal results, make sure it's a print out. Here in the UK we have the legal right to our results under the Data Protection Act.

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Some doctors just feel the need to tinker with the dose of new patients, as a way of exerting their authority! It's very doubtful he actually knows what he's doing. :(

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Thanks for your response greygoose, that’s what I’m afraid of! 😮

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You're going to have to assert yourself, and show him who's really boss!

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UK GP practices are supposed to offer online access for blood test results. Ring and ask if this is available and apply to do so if possible, if it is you may need enhanced access to see blood results.

In reality many GP surgeries do not have blood test results online yet

Alternatively ring receptionist and request printed copies of results. Allow couple of days and then go and pick up. They can make nominal charge for printing but many will do so for free (£10 max and can not charge at all after May 2018)

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