Any advice please?

[Mwms9]

Hi, I have hyperthyroidism and my last bloods week and a half ago were:

TSH: 0.02(0.5-5.5)

Free T4: 10.5 (7-17)

I was on 30mg of carbimazol and have reduced to 15mg a day. I have been getting more constipated, tired, itchy scalp and puffy eyelids, my heart is not as fast as when I was diagnosed but still higher than normal.

What is going on should I be taking more carbimazole or is my dose making me hypo? I am so paranoid I should be taking a higher dose! Please if anyone can offer any advice it would be much appreciated!

[Mwms9]

Hi, thank you for your message. That's what I thought too but was worried as my heart is still fast, my GP says I'm still hyper and that I should take 30mg even though my t4 was nearly at the bottom end of scale a week and a half ago. I have only taken 15mg as I feel they were overmedicating me.

[Mwms9]

Thank you, I think that is what my gut is saying, I will find out my next levels on thursday after my test so will see what's happening, this is all so confusing and scary not knowing what's going on and still not knowing the cause of it. I wish GP's would know more about it I feel so let down and that continuing on 30mg would mean I have no t4 left!

I will have to buy some oranges, I only have the vit c dissolvable ones, why are these no good? Thank you

[Mwms9]

Ah I see, I will have to stock up on oranges thank you for the tip. My uncle has an underactive thyroid but no one else in the family. Arthritis is in some of my relatives though and I have polysistic ovaries but not the syndrome. I have been under a lot of stress in the last two years after the birth of my daughter after an awful delivery & recovery and need further surgery and also had an ectopic last year. Maybe that triggered it all off!

[Mwms9]

Hi. The only antibody my GP could test was the TPO and it was negative which makes the hashimotos unlikely from what I've read? My original free t4 was 35.5 (7-17) but the 30mg of carbimazole has bought it down quite fast. Apparently GP said the endo will carry further tests out, I guess the ones for graves. I had to have emergency surgery with the ectopic and the removed my fallopian tube, I can't imagine anything left? I do think things sparked off after that though as it was traumatic.

[Mwms9]

I have read that the RAI is not good and I do not want this at all, I will have to find some good reasons to object if they offer it. Can I ask is the uptake scan the same thing as RAI as I don't want that either. I'm hoping as my levels changed with carbimazole quickly I could stick with that!