Hi I was instructed by my endo to stop block and replace treatment 3 weeks ago. I have Graves’ disease- diagnosed April 2017. I felt really foggy this week and have slight tremors in my hands today. I’m also taking antenalol for high blood pressure which has lowered it to a normal range. Does it take a while for thyroid hormones to regulate themselves or am I on the road to hyper again? I feel like I’m over reacting or is my anxiety back? Should I go to my GP or just wait to see if it calms down? I’m so confused and won’t see my endo until the end of April.
Tremors again!: Hi I was instructed by my endo to... - Thyroid UK
Probably best to get bloods done and if needs be get back on the meds. I could never get past a few weeks before replapsing 😕
Thank you my tremors have got worse this afternoon. Did you end up having rai ?
Many years ago I had a partial thyroidectomy but Graves still came back with a vengeance so I then had RAI, all good since.
those tremors are the absolute pits ! I would ask for a blood test asap - otherwise, stress and anxiety will make you feel worse anyway. I wouldnt go back on the meds without the blood test.
It's a shame we can't test thyroid levels as easily as diabetics can their sugar levels,
Yes Wouldn’t that be great if a pin prick test was available ! I’m awaiting my results. It’s so weird they seem to come and go but I can feel an inner tremble all the time. Didn’t take the carb even though I was tempted I knew it was a daft thing to do without a blood test. Knowing my luck my TSH will be at the very bottom end of the range so they’ll say it’s normal!
I hate the inner tremors with a vengeance. Before I was diagnosed, and not realising there was such a thing as inner tremor, I would find myself staring at my outstretched hands, trying to work out if they were really trembling, or whether it was my imagination. Eventually, my hands were visibly shaking, and my handwriting was even worse than usual ! I remember hiding my hands so that people couldn't see.
Sorry but did you mean get back on meds now - I do have some carbimazole left! I just feel like if I went to gp out of hours or A&E I’m wasting their time but on the other hand I
don’t how quickly things can escalate. Did the hyper symptoms come on quickly for you?
I would get bloods done at your GP asap and see what the results are, if you start back on Carb before blood test you won't know if you needed them or not.
I found it took a while for my body to get used to the ‘new normal’ when I stopped my block and replace. I was on b & r for almost exactly a year.
I made sure my vitamins D and B12 plus ferritin and folates were all well up in their ranges. I ate well, cut out any junk food and fizzy drinks, got enough but not too much exercise, made sure I got enough sleep, relaxation and rest and eventually things settled. Saying that you can always have your bloods checked to be sure.
Your hormones should regalate in time just be patient. I had a Thyrodectomy when i was 20 and still take Thyroxine. When i stopped them just for a short time i noticed the differance. Back on them now. Try not to panic and if you still feel the same in 4 weeks ask your gp for a blood test.
Can i ask are you on Levothyroxin for your Thyroid?
Can you get a blood test soon to check your levels? Only the syptoms you have is what i had when i stopped taken Levythroxine.
Yes I’m going to my gp tomorrow. He’s really good and will arrange a blood test for me and liaise with endocrine department too. Annoys me that if I contact endos secretary they never get back to me. Thanks for listening - it means a lot
Aren’t Tremors awful!!! 😢
So I feel for you. I had beta blockers for 6 years supposedly for anxiety until I was diagnosed with hashimotos 2 years ago. Over time propranolol stopped working. Then a year ago I managed to get gabapentin and it’s been a life saver!
My tremors have eased so much it’s such a relief. They are a pain killer and muscle relaxant and don’t always suit everyone. I think my body is/was so tired gabapentin relaxed my muscles and stops the tremors. Also I’ve found gluten causes tremors too. As I’ve cut it out my diet within an hour or so of eating it my stomach mainly then whole body shakes with tremors.
Yes I can get anxious (another symptom of being hypo now) and shake but that’s generally when I’m not well, if I’ve done too much or eaten gluten. Try to find your triggers? What do you do before they start? Anxiety can cause tremors but I find it’s usually because I’m unwell in the first place.
Sorry for the long reply but it’s such an awful symptom to handle and I find it quite distressing. Maybe i hope I’ve given you some help somewhere! X
Hi MissFG - yes the tremors are a nightmare. I have a bad habit of watching my hands to see it, even though I can feel it anyway! Only a blood test will confirm if I’m hyper or hypo!
Good to hear that you’ve found medication to stop them. And that you’ve found that gluten is a trigger.Thanks for replying
Also if your very fatigued it’ll affect your hands more. I notice mine hands when I try to eat and lift my fork as it’s a bit embarrassing. Make sure you get enough rest as your body with shake / tremor if it’s extremely fatigued x
I also have graves disease. Its not fun. Do u take a bete blocker. I also had hand tremores and mine were bad. I also lost 60 pounds in one month. I have been sick for 22 years with hyper/graves.
Hi Episnowwoman. Originally I was on propanalol but stopped them when the tremors stopped. Now I’m on antenalol for high blood pressure but they don’t control my more recent tremors. I never lost any weight like you.
Wow 22 years! That’s a long time puts my one year into insignificance. Did you have rai?
I take that to. I wont let do rai because it could affect other organs. I have real high blood pressure i take 300 mgs of meds everyday. Graves also affects ur teeth i have lost over half of my teeth. I was close to death 2 times when i was diagnosed. Not fun.
Wow! You’ve certainly had a tough time. I’m have had problems with periodontal disease and tooth loss but am currently under a trial to save my gums and teeth! I’m 48 but feel like I’ve had Graves symptoms all my life without it ever being full blow until last year! How are you feeling now ?
437jd. U mention u're 48. If female, please watch out for menopause. It could make things worse like taking existing symptoms and bringing it back with a vengeance or exploit any weaknesses in your health and bring on new unpleasant symptoms.
Do bear in mind this will be a delicate transition period for u. Must get sufficient rest, stress less, eat well, stay well hydrated. Menopause and hyper or thyroid symptoms have a very fine line between them. Being aware can save u unnecessary stress later. The transition period could last a couple of years.
I've graves too. Probably about 7-8yrs.
Can I ask which meds u're taking?
I take methimazole and a beta blocker.not fun
I have that disease in my mouth to its passed from mother to child. Iam now full blown menopause. Iam sick and tired of being sick and tired. I cant seem to get rid of the fatigue no matter what i do. My doctor has checked my labs and says my graves is gone but i have my doubts only because the endo i went to for 8 years said i would be sick until i leave the earth.
What's your methimazole dosage? How often do u get blood tests?
Have u been able to work these 22 years? That's one of my biggest worry - not being able to work
I take 5 mgs 2 times a day. Yes i worked 40 to 55 hours a week plus raising my son. Was not easy. I dont work now. I get labs whenever my doctors orders them. I can't get rid of the fatigue no matter how much i sleep and now iam full blown menopause.
I am really sorry to hear that : (
For a certainty, with your serious graves condition and still putting in so many work hours, it's taken a toll on your body over the years. And with menopause, it's almost like a new condition adding to all the existing ones. It's no wonder u feel like u do now. My body held together before menopause despite the graves. The full onset of menopause coupled with a traumatic period culminating with my dear father's death, unhinged the body and it just broke.
For sure, menopause can exacerbate existing conditions : (
Eactly my body has taken alot of beatings over the years. U get it. My friends dont because they r not sick with graves. And high bp does not help either. Some days i just dont feel good at all.
Did u have a high BP all along?
Beatings is a great way to describe it : ) I definitely feel like my body's all beaten up especially this last year.
Like your friends, most docs are the same. They do not have graves and so cannot understand. All those years in medical school is just useless. They are not even able to give good or useful advice?!
Eactly. Iam to the point of my life that iam sick and tired of being sick and tired. Sometimes i just up and ask god for help. Being sick is not fun at all.
Yes i have had bp all my adult life.iam 53.
Making slow small changes to diet, lifestyle might help? Small changes here and there to test what works and helps u feel better, might be the way to go? Supplements where necessary might help. These can be expensive so some times I get creative and look for cheap alternatives. It will take time and plenty patience to reverse all those years of toll on the body. It's not impossible. Likely eventually u'll find u've done an almost complete overhaul compared to how u live now.
God bless you with better good health
I dont put alot of faith in doctors because a doctor caused my hyper/graves . he did not listen to me so it festered in my blood for 17 years before it was detected.
Tired definitely fits the bill for Graves! I can have 10 hours sleep and still want more, I’ve never woken up refreshed. I’m sorry you feel so rubbish have you much family support?
My mom passed she always had my back. I have one son.
Trauma or stress sets off the gene for graves.
I lost my mum, gran and dad in a three year period, then I got graves...... think it gets you when you’re at your weakest!
Wow sorry to hear that. I lost my mom and husband five months apart. Some people breeze thru life and others catch it all!! Life has never been easy for me.
Yes it is. I will always miss him. He was my rock when i needed him. I learned to go on but i will never get passed it.
Yes i do time does not heal all wounds. Wow ur dad was a smart man!!!
My mom was smart to. Now they r both in heaven sharing their wisdom!!!!
Thats ok. My mom finds good in everyone. Does ur dad come back to u?
Yes my mo comes in dreams with messages.
Sorry i missed ur post. Time difference. Thank u for the resource. I will check her out. Please keep in toch. I love talking to people on this site.
No worries : )
Yes please keep in touch too. Do let me know if u try something and it helps.
Must be. My husband does to. I smell his old spice that he wore when he is around me. I miss my mom everyday. We were best friends. Always together.
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