Heavy cold/flu like feeling in head every day but no flu or cold symptoms, what could be the cause? Sore dry eyes also and puffy face

[mistygrey]

I am trying to find of the chase of a heavy head feeling I have every day, usually most mornings but also at night too. I have Hashimotos and I am Hypothyroid.

It feels like I have a head cold or fluey but no flu is present or cold. It comes over me and makes me feel so unwell, I recently have been tested for thyroid eye disease as my eyes are very dry and Endo suspected this however it also feels like my face is all puffy and sore tender to touch around under my eyes and cheeks. Does this sound familiar and how can I stop it?

I have saw a rheumatologist and Ent doctor and nobody has found a thing except suspecting sjogrens but negative blood test came back and also negative scan on my salivary glands, I am at a loss and finding it hard to hold my job down at this rate?

Any suggestions welcome.

Also I am dairy and gluten free,

Thanks

[mistygrey]

I think you could be right, I remember feeling like this at my initial diagnosis time around 3 years ago and then when my meds and levels were working the flueyness went away eventually.

How did your Husband get rid of this awful Feeling? It's horrible and lingers for hours when you get it!

[Jazzw]

Looking at the results you posted last week healthunlocked.com/thyroidu..., you seem a bit undermedicated to me - not that the endo’s going to agree as everything’s in range.

But there’s a lot of room for improvement in your FT3 levels, which is what’s making me think that you need an increase in T3.

How much levo/lio are you currently prescribed?

[mistygrey in reply to Jazzw]

Jazz you are so right, I am definitely under medicated. My TSH is currently 1.3 and I have been told to increase my T3 by the Endo who also said 1.3 is normal but as we know this isn't optimum for us as we know how we feel!

I am going to try up the T3 slowly as I feel my body is crying out for more medication.

I remember having these horrid flu like symptoms when I first got diagnosed and wasn't properly treating my thyroid so maybe this is currently what is happening to me?

[williamsad19]

What brand are u taking? I had this when I took one with acacia in it. It’s a strong pollen and can cause sinus problems etc x

[seeking-answers]

Hi MistyGrey:

Sorry to hear your problems, but it's good to know someone else also seems to suffer from these odd symptoms too! I have Graves disease and used to have regular puffy face, soreness to touch around the eyes that would come and go, and ALWAYS a waxing and waning sore throat. After 7 years of on the spectrum and some awful joint, muscle and neurological issues, I finally went through the roof with Graves antibodies and was diagnosed. 3 years later I am heading to remission. BUT... the "flu" thing still comes and goes. Bad news it is that it reappears, but good news is that it never seems to develop into full flu.

Like so many people on this forum, I'd suggest you really dive into your vitamin levels, especially D3 and B's. Check out what others have said, they give really good advice. I am also gluten and dairy free, but found that SUGAR free is imperative. Terry Wahls says in her book that sugar feeds the autoimmune disease and I think she is 100% right. Sugar was my addiction and it's hard to beat and I still fall off sometimes, but see an immediate reaction when I fall and get back on the straight and narrow. So, don't lose hope, but keep trying new things one at a time and see what helps you, keep notes, and then keep what works, ditch what doesn't and move on. Sometimes it can be really simple.... I've been working on this 3 solid years and just the other day my acupuncturist and I were discussing my lingering problems with Neuro and eye problems and she suggested Lemon Balm tea.... I hate tea (yeah, don't kill me) but tried it (keep in mind I have Graves) and saw an immediate improvement.... go figure... always something to learn. Two weeks later and I am now a 2 cuppa a day gal!

Lastly, educate, educate, educate yourself. This forum is awesome, it helped me when I was DESPERATE and sure I had APS (right on autoimmune, but wrong disease). My favorite authors are Dr. Terry Wahls,Dr. Mark Hyman (his Broken Brain series is great) and Dr. Amy Meyers (thyroid specific).

Keep trying because it does get better. Do not give up hope, there are answers out there, you just have to find the ones that work for you!

R.

[hellybaybee in reply to seeking-answers]

Insofar as I know... I have hypothyroidism, vit d and vit b12 deficiency.... gluten and sugar free was definitely the way to go for me... I couldn’t cut out sugar completely so I would just have something sweet on one day a week. When I started eating it more than that it made me feel sick. I couldn’t have tea without sugar so would just have either green tea or water for breakfast, it was hard at first but got easier.