My mother's symptoms: Always cold, pale dry skin and hair, hoarse voice, extremely drooping eyelids, tired all the time etc. She had numerous TFT's that all returned normal, which confused and worried her GP. In the end she was prescribed first Drinamyl then Dexedrine, which addressed the tiredness and potential weight gain and not much else.
Since my mid 50's I've begun to experience increasingly similar symptoms. Outer 3rd of eyebrows gone and the rest thin and sparse, very pale and puffy face that a doctor once suggested looked myxoedemic, weight gain that is extremely resistant to diet and exercise. drooping eyelids that have been surgically reduced and returned, and most importantly I've slowed down almost to a stop - and it really worries me. I'm also far less alert and sharp than I was, with a muddly sort of head.
However, I am not excessively cold, and my TFT returned as normal. Do you think its possible/more likely that both my mother and I have both suffered from something else?
Written by
mouldylocks
To view profiles and participate in discussions please or .
Medichecks Thyroid plus ultra vitamin or Blue Horizon Thyroid plus eleven are the most popular choice. DIY finger prick test or option to pay extra for private blood draw. Both companies often have money off offers.
All thyroid tests should ideally be done as early as possible in morning and fasting. This gives highest TSH and most consistent results. (Patient to patient tip, GP will be unaware)
If antibodies are high this is Hashimoto's, (also known by medics here in UK more commonly as autoimmune thyroid disease).
About 90% of all hypothyroidism in Uk is due to Hashimoto's
If you add what test results and ranges you have had, members can advise.
Due to the number of members we have on this forum, I think the last place to go for an accurate diagnosis is a GP or Endo unless your TSH is 10 or over - if they ever do a proper test.
You need a new blood test as 'normal' to the GPs just means our tests are within normal range it takes no account of clinical symptoms we have because they are no longer trained in them or have one clue what is a symptom.
We have two private labs which will do all of the necessary blood tests your GP will not do.
Many GPs seem to have been taught that if the TSH reaches 'somewhere' in the range, even the top there job is done when we need our TSH to be 1 or lower with Free T4 and Free T3 in the upper part of the range. The latter are rarely tested.
Just to repeat others, but a doctor telling you your TFTs are normal doesn't prove anything! Two possibilities are that they could be reading the thing completely wrong (common), or you could have one of the slightly more unusual patterns, which almost no doctor will identify.
Both sets of symptoms you describe sound classically hypothyroid. The loss of the outer third of the eyebrow is extremely characteristic!
The fact that your GP said that you looked myxoedemic and hasn't followed through with a trial of treatment is complacency on a whole new level. My mother has had similar issues with her B12 - it had been 'low in range' for ages and is left with severe irreversible neuropathy.
I wonder when it was that doctors stopped treating on clinical presentation and having the confidence that they're correct (which is what they'd been trained to do in the past) to go on bloodwork only ... they're not data analysts. They don't understand the statistical distribution (many GPs didn't do Maths A'Level) that went into these ranges and that the vast majority of healthy individuals are nowhere close to being at the lower end of a range and that the probability of being ill if near the lower limit is actually extremely likely.
Using bloodwork is like asking for validation from a friend about something that you know in your gut to be true, even when your friend may not be the expert in such matters. I wouldn't ask a colour blind person if they thought Van Gogh's Starry Night was a good painting, for example!
Content on HealthUnlocked does not replace the relationship between you and doctors or other healthcare professionals nor the advice you receive from them.
Never delay seeking advice or dialling emergency services because of something that you have read on HealthUnlocked.
Any ideas?
Introduction - I'm new here
I'm new here... How can I get T3 test?
Here again looking for support......a few questions (not diagnosed but loads of symptoms)
New here; hypothyroidism symptoms not improving with levothyroxine, what can I do?
