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Thyroid UK
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TED thyroid eye disease

I just saw my Endo who thinks I now also have TED she has ran the tests and I am waiting to hear back.

Is this something that will get worse like my Hashimotos did or will it be easily treatable? I was advised to try selenium and prescribed eye drops meantime but steroids might be an option if it doesn't get better.

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Mistygrey,

It can get worse. Suppressing TSH <0.1 can help suppress thyroid activity which will reduce the Graves antibodies stimulating the eyes.

Posts on TED healthunlocked.com/thyroidu...

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Oh no not another thing clutter :( it's one thing after another isn't it?

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Mistygrey,

Fingers crossed the test are negative for TED.

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Whatever you do you must see a TED specialist even if it means trips to Moorfields ....accompanying Hashimotos is uncommon but it does happen ...usually its less serious than when it accompanies Graves Hypothyroid

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It’s difficult, I’m not sure it’s all that easy to treat and I think some people seem to be affected more than others. If it turns out you do have TED then you want to be treated by someone who is an expert in TED.

Whatever happens you want to be using preservative free eye drops and you need to put them in frequently throughout the day and keep using them even when your eyes feel good.

If you’re not already eating a totally gluten free diet it might be worth giving that a try to reduce your thyroid antibodies.

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Agreed ...preservative free eye drops sre slso vital ...you might need to get them via hospital eye dept as they can be hard to source

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