What's the cost of more visits to endos? - Thyroid UK

Thyroid UK

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What's the cost of more visits to endos?

lynmynott profile image
lynmynottPartnerThyroid UK
5 Replies

Interesting question asked - parliament.uk/business/publ... Something Thyroid UK wants to know the answer to. The Regional Medicines Optimisation Committee South discussed at their meeting in January - awaiting minutes - sps.nhs.uk/networks/regiona... Seem to be part of the Specialist Pharmacy Service? Next meeting is 3rd May. Might be useful if patients contacted them? If only there were contact details for them.

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lynmynott profile image
lynmynott
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5 Replies
SlowDragon profile image
SlowDragonAdministrator

Most patients just don't get referral back to endocrinologist. Just a letter in post saying Liothyronine is withdrawn and often no increase in Levothyroxine to compensate either

Whole situation is totally unacceptable.

Shelley1954 profile image
Shelley1954

Interestingly, having been referred to an endo & seen him 4 times, despite me giving my GP a copy of his notes with blood test results etc, these are not on my records! So its a waste of money it seems anyway!

crimple profile image
crimple in reply to Shelley1954

Well not having endo notes on your GP file would seem like a good way to ignore your illness and deny you proper treatment.

It is all disgraceful how thyroid patients are NOT treated properly.

Shelley1954 profile image
Shelley1954 in reply to crimple

Could also be very dangerous.

crimple profile image
crimple

Thanks for posting Lyn, seems like the usual non informative NHS waffle to me!

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