Hypo to hyper and then back to normal?

[catherinera]

I had a TSH level of 80 a year ago. started on 100 Levothyroxine, then increased to 150. This was too high and I went hyerthyroid. It is now back to normal as I have stopped taking the Levo. Could this be permanent or just because I have been taking too much. Thank you, I am new to all this. The doctors want to stop the Levo all together but I am worried that I will feel so ill again.

[shaws Administrator]

Welcome to our forum, and I am sorry you have hypothyroidism.

I would suggest you start levothyroxine again at 50mcg and get a blood test six weeks later with a 25mcg increase and so on every six weeks until you feel much better. Increases should always be gradual. Levothyroxine should be taken, usually first thing, on an empty stomach with one full glass of water and wait about an hour before eating as food interferes with the uptake of the hormones.

If you have been diagnosed as hypothyroid it will be a life-long condition and if you don't take replacement thyroid hormones (levothyroxine) then you can develop heart and bone problems or more serious conditions. Thyroid hormones run our metabolism from head to toe and we have millions of receptor cells which need T3 which is converted from T4 (levothyroxine).

I would ask your doctor to do a Full Thyroid Function Test (NHS doctor probably wont but ask anyway) which is TSH, T4, T3, Free T4, Free T3 and thyroid antibodies. B12, Vit D, iron, ferritin and folate.

The thyroid tests the lab may not do you can get privately through one of our recommended labs.

Tests have always to be at the earliest, fasting (you can drink water) and allow a gap of 24 hours between last dose of levothyroxine and the test and take afterwards.

Always get a copy/print-out of your results for your own records and you can post if you have a query.

[SilverAvocado]

Have I got this right, you've now stopped all Levo? How long for? It's common to feel good on first stopping Levo, but if you had a TSH of 80 you will certainly start feeling rubbish again after a few weeks.

Although you haven't mentioned whether you had symptoms in the very beginning? That's a very high TSH, so the expectation would be that you would be very ill. But the story can be more complicated than that, so maybe you didn't have symptoms?

Let us know, and if you have any more blood tests, particularly freeT4 and freeT3 post them, too.