Oldschool1969

[mremeadows]

Hello just diagnosed with hypothyroidism and was wondering what some of you folks symptoms might have been that wasnt listed on possible symptoms thank you

[Nanaedake]

Hello Mremeadows, welcome to the forum and you'll find lots of useful help and support here.

Symptoms can be wide, varied and quite individual and they can also overlap with symptoms of other conditions or deficiencies. If you want to post a list of your symptoms and your latest blood test results, people might be able to suggest whether symptoms are likely thyroid related or possibly something else.

I hope you are feeling better soon.

[mremeadows in reply to Nanaedake]

Thank you very much its like im im in this room where people might be able to share experiences to help its relieving when the family doctor spends ten minutes with you and send you packing with your diagnoses and a prescription

[Nanaedake in reply to mremeadows]

Yes, I agree, a 10 minute appointment for a new diagnosis of hypothyroidism is not at all satisfactory. Unfortunately, the NHS does not seem to consider hypothyroidism very serious and therefore does not allocate any additional time for new diagnosis. As we all know, being hypothyroid has a big impact on your ability to function and on quality of life but the aim of thyroid treatment and medication is to restore you to a symptom free state so you will get better in time. Everythiing with thyroid is slow.

Some tips we can share which your doctor might not have told you...

Take your levothyroxine on an empty stomach with a full glass of water such as first thing in the morning and leave one hour before eating or drinking anything except for water. Leave 4 hours before taking any other medicines or supplements.

Always have your blood tests first thing in the morning and fasting (doctors will say this is unnecessary). Take your levothyroxine after the blood test, not before.

When newly diagnosed, you should have a blood test every 6 weeks and increase the dose until your TSH reaches around 1 or a little lower which is where most patients feel well. If your doctor has not instructed a blood test in 6 weeks then ring and book it in advance yourself.

You can get online access to blood test results if in England. Ask your GP reception for a password login so that you can access blood test results, not just appointments. Keep a record or print out of all your results and blood tests, amount of medication you are taking, type of levothyroxine so that if you run into problems, you've got a log.

Stick to the same formulation of levothyroxine and find one that suits you. Some people find levothyroxines are not interchangeable although 'officially' they are. If you have problems with any type of levothyroxine make a yellow card report. This helps to maintain quality for everyone.

If your doctor has not tested vitamin levels he/she should do so as patients with thyroid conditions are often deficient. Ask for tests for:

B12

folate

ferritin

vitamin D

Never take the doctors word for it that test results are fine. Doctors often say fine when anywhere in range and that does not necessarily make us feel well. So get a print out of all results and post here. some people have over 20 years experience living with hypothyroidism on this forum and can give you excellent advice.

[mremeadows in reply to Nanaedake]

Wow i truly appreciate the help and i will take all advice

[mremeadows in reply to Nanaedake]

Usa

[Rmichelle]

Mremeadows, this site is full of very wonderful people and no need to feel isolated by your problem, i joined this site in july when really dire and poorly with hyperthyroid and now hypo and still suffering, but the people here are so informative and supportive, you will learn alot and also have a giggle and make friends.xx 😊

[mremeadows in reply to Rmichelle]

Thank youv

[helvella Administrator Thyroid UK]

mremeadows,

The Thyroid UK website has a good sign and symptom list - not as long as some but pretty well grounded in reality.

thyroiduk.org.uk/tuk/about_...

My own issues included:

Poor sleep - would fall asleep OK but wake up and be unable to sleep again for hours;

Plantar fasciitis;

Dry skin, especially on elbows and feet. Had suffered almost painful hard, dry elbow skin for many years but had never realised it indicated anything;

Feeling of dry skin on hands - obsessively applying handcreams - even when objectively they were not that dry;

Less tolerant of cold - much more difficult to feel warm after once becoming cold;

Dry eyes;

Poorer night vision and lowered tolerance of, for example, oncoming headlamps;

Swollen tongue with sore tip;

and many others...

[mremeadows in reply to helvella]

Ive had weight gain,anxiety ,depression dry legs and feeling short of breath also foggy memory and my neck hurts once in a while but also high b.p. thanks for advice

[helvella Administrator Thyroid UK in reply to mremeadows]

mremeadows,

Blood pressure is one of the oddities - in some it goes down, in others up.

[Heloise]

Hey there, sorry you already had a thread, lol. Well, you were asking about NDT but first you have to think about having an autoimmune disease and what that means. Your thyroid did nothing wrong, something is targeting it. The usual scenario is something is aggravating your immune cells and making it very vigorous against some enemy. Often the enemy is gluten or dairy and it inflames the gut so the immune cells begin getting rid of the enemy. the problem is that your thyroid tissue looks very much like gluten proteins which are floating out of your gut into the blood stream. This starts a deterioration of your thyroid and it can't produce as much hormone as you need so your pituitary gland sends out more TSH to stimulate more hormone from the thyroid. As your TSH goes up you start having symptoms which can be anywhere in your body because thyroid hormone goes into every cell of your body. This is very inflammatory as well and inflammation is painful. When it affects your brain you will obviously have symptoms there. Fast turnover cells like hair and nails almost immediately suffer. There are endless symptoms so you can probably assume the ones you are feeling could be a part of this.

Taking levo which is a synthetic T4 or Armour thyroid or some other natural hormone (there are many) only gives you more hormone and does nothing about the other issues until you stop the gluten or dairy or whatever the enemy happens to be. There is lots of help and information and I know it may seem overwhelming but you can do this and feel much better.

This site is helpful. stopthethyroidmadness.com/l...

[mremeadows in reply to Heloise]

I went vegan last week and its easier than i thought you know something i ate gluten in bread and i felt terrible my anxiety was very high and i just felt like crap armour thyroid is that from bovine also your right my it is overwhelming im saying is my hypertension caused by my thyroid and my anxiety and depression and so on you sound very knowledgeable im sorry youve been going thru this so long i just started my cycle of therepy im already nervous i dont care to mess with pork for health and religious reasons thoe alternative ?

[Heloise in reply to mremeadows]

I posted on the other thread. Do you see a number under the little bell in the top margin? Click on that. But I do want to say that we watched a series call Betrayal by Tom O'Bryan and when he explained gluten and how it clumps in the gut and rips at the lining which causes other unwanted proteins to enter the bloodstream and this doesn't just happen to sensitive people, it happens to everyone to a degree. Now your gut lining will heal in a matter of hours for some, longer for others but you can see just how hazardous that could be.

You are going to be rather disturbed when you learn all the things your doctors are ignorant about. Medicine has become a huge distortion when it comes to chronic disease.

[jenniferarchiba]

My symptoms were anxiety, swollen face, carpal tunnel, arm and leg pain and heaviness, sometimes I feel like I'm going to pass out, dizzy spells, panic attacks, difficulty breathing, chest pain, chills. Fun!