Baby girl with hypothyroidism : Hi I am new. My... - Thyroid UK

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Baby girl with hypothyroidism

Isabellaj profile image
7 Replies

Hi I am new. My 8 week old baby girl has been diagnosed with hypothyroidism. Have come here for support. Thanks for letting me join the site.

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Isabellaj profile image
Isabellaj
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Clutter profile image
Clutter

Welcome to the forum, Isabellaj.

We don't get many hypothyroid infant posts but yours is the second this afternoon healthunlocked.com/thyroidu...

You and babyj2410 may want to support each other.

There are posts on hypothyroid children (not restricted to congenital hypothyroidism in infants) in healthunlocked.com/thyroidu...

humanbean profile image
humanbean

I'm sorry to hear that your daughter has been born with hypothyroidism. However, the fact that this has been identified early is hugely helpful.

A very important tip for the future :

Start now, buy a folder, and ask for copies of all your daughter's blood test results, including the reference ranges, and keep them in the folder. You don't want just the word "normal" you want the numbers. Start keeping these records for every blood test from now on.

When your daughter gets old enough to start displaying recognisable symptoms or can tell you about symptoms, start keeping records of those to go with each blood test.

So, for example, if she is 5 years old and has a blood test, with the test results note down the symptoms your daughter complains of at that time (if any) with the results that applied at that time.

In years to come your daughter should be able to look back and find out, for example, that she feels best when her Free T4 is 60% or 50% or 70% of the way through the reference range, and feels terrible when Free T3 is below mid-range or whatever.

It will really help her in the future.

If you ever refer to these results don't ever give the originals to doctors. Give them copies instead and always keep the originals!

Isabellaj profile image
Isabellaj in reply to humanbean

Will do, thank you

humanbean profile image
humanbean in reply to humanbean

Oh, another comment...

There are different reference ranges for thyroid-related hormones for different age groups.

Infants have higher TSH, Free T4 and Free T3 than adults, and as they get older the reference ranges for all the thyroid-related tests get narrower until they are the same as adults. You can see an example of the kind of thing I mean at the bottom of this page :

frontierpathology.nhs.uk/pu...

Please note that the reference ranges supplied with blood tests should always be used, not just random reference ranges from any lab posting on the internet.

babyj2410 profile image
babyj2410

hello , my son was diagnosed yesterday at the Manchester children's hospital . He's just 6weeks old. He has an underactive thyroid although scans review Tha he has got a thyroid gland . He had his very first dose of medication today. To look and be with him though he's just a normal happy baby . I'm here for support if you need anything 😊

humanbean profile image
humanbean in reply to babyj2410

Hi, babyj2410 , the posts I've made above for Isabellaj apply to you too. Hope you find them useful. :)

Good luck with everything. :)

Isabellaj profile image
Isabellaj in reply to babyj2410

So sorry to hear about your son :( my daughter's hypothyroidism wasn't found straight away, she had a TSH of 6.2 (0.2 - 4.2) free T4 16.8 (12 - 22) then TSH went back down to 0.69 (0.2 - 4.2) and now this result a week later.

Thanks for support, I'll be here too.

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