Vitamin D 14.8: Hi can someone please advise on... - Thyroid UK

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Vitamin D 14.8

Kimbo8 profile image
18 Replies

Hi can someone please advise on what I take for vitamin D 14.8 nmol/L thankyou

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Kimbo8
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SeasideSusie profile image
SeasideSusieRemembering

Kimbo8

You don't take anything yourself. You speak your doctor, say you understand you have severe Vit D deficiency and will he treat you appropriately. See NICE treatment summary for Vit D deficiency:

cks.nice.org.uk/vitamin-d-d...

"Treat for Vitamin D deficiency if serum 25-hydroxyvitamin D (25[OH]D) levels are less than 30 nmol/L.

For the treatment of vitamin D deficiency, the recommended treatment is based on fixed loading doses of vitamin D (up to a total of about 300,000 international units [IU] given either as weekly or daily split doses, followed by lifelong maintenace treatment of about 800 IU a day. Higher doses of up to 2000IU a day, occasionally up to 4000 IU a day, may be used for certain groups of people, for example those with malabsorption disorders. Several treatment regims are available, including 50,000 IU once a week for 6 weeks (300,000 IU in total), 20,000 IU twice a week for 7 weeks (280,000 IU in total), or 4000 IU daily for 10 weeks (280,000 IU in total)."

Each Health Authority has their own guidelines but they will be very similar. Go and see your GP and ask that he treats you according to the guidelines and prescribes the loading doses, don't leave the surgery with a prescription for 800iu daily, it needs to be loading doses. Once these have been completed you will need a reduced amount (more than 800iu so post your new result as the time for members to suggest a dose) to bring your level up to what's recommended by the Vit D Council - which is 100-150nmol/L - and then you'll need a maintenance dose which may be 2000iu daily, it's trial and error so it's recommended to retest once or twice a year to keep within the recommended range. You can do this with a private fingerprick blood spot test with City Assays vitamindtest.org.uk/

Your GP wont know, because they're not taught nutrition, but there are important cofactors needed when taking D3

vitamindcouncil.org/about-v...

D3 aids absorption of calcium from food and K2-MK7 directs the calcium to bones and teeth where it is needed and away from arteries and soft tissues where it can be deposited and cause problems.

D3 and K2 are fat soluble so should be taken with the fattiest meal of the day, D3 four hours away from thyroid meds.

Magnesium helps D3 to work and comes in different forms, check to see which would suit you best and as it's calming it's best taken in the evening, four hours away from thyroid meds

naturalnews.com/046401_magn...

Check out the other cofactors too.

Kimbo8 profile image
Kimbo8 in reply to SeasideSusie

Thankyou my vitamin D when tested by GP January 2017 was 70 so bit of a drop if taking 800iu

SeasideSusie profile image
SeasideSusieRemembering in reply to Kimbo8

Kimbo

Was your latest level of 14.8 from a GP test?

800iu is too low even for a maintenance level. Mine is 2000iu all year round and my Vit D level is optimal, I keep it around 150nmol/L.

If we are good at making our own Vit D from the sun then our bodies store it during the summer if we get out enough in the sun with some skin uncovered and without sunscreen. Then during the winter months, when we can't make our own Vit D as there's no sun, our bodies draw on the stored Vit D so levels will lower, so it makes sense for almost everyone to take Vit D during the winter months.

Kimbo8 profile image
Kimbo8 in reply to SeasideSusie

Thankyou yes from GP test

SeasideSusie profile image
SeasideSusieRemembering in reply to Kimbo8

Kimbo

Then as it's a GP test your doctor needs to prescribe the loading doses now.

As we know from your other thread that you have Hashi's, then when you buy your own D3 eventually you should use an oral spray for better absorption, eg BetterYou who do a D3 spray and a combination D3/K2-MK7.

Mary-intussuception profile image
Mary-intussuception in reply to Kimbo8

Are you taking Vitamin D 800IU tablets on prescription from your GP, Kimbo? How long for?

Have you had any other supplements presribed?

Kimbo8 profile image
Kimbo8 in reply to Mary-intussuception

Thankyou the vit D 800iu tablets stopped January 2017 was taking them for 4 years

Mary-intussuception profile image
Mary-intussuception in reply to Kimbo8

None of this is making sense is it Kimbo?

You were prescribed Vitamin D for 4 years and then they were suddenly stopped 11 months ago. Your GP did tests on 11 October which revealed Severe Vitamin D Deficiency. It should have followed that you either saw the GP - or - collected a presription for Loading Doses.

Do you know why it was stopped? What prompted the GP to test on 11 October? Your symptoms, or the fact that he noticed tablets had been stopped? Or both? Either way, I would phone and ask to speak to that GP tomorrow.

Kimbo8 profile image
Kimbo8 in reply to Mary-intussuception

I wasn't told to pick up prescription for loading doses and it was stopped because my level in May 2017 was deemed adequate 56.3 and the GP tested in October 2017 to see if I was maintaining my level of vit D

Mary-intussuception profile image
Mary-intussuception in reply to Kimbo8

But you are not maintaining your level are you? It dropped from January to May and has dropped even further when taken 7 weeks ago.

sue_b profile image
sue_b in reply to Kimbo8

You had been taking supplements for 4 years and your levels were only 56.3? that should have told your GP something and even though clearly you were deficient, nothing was done about getting you back on vitamin D? It really is incredible, like they really have no clue what they are doing. As seaside susie says at the top, there are guidelines he should be following. Best of luck x

Mary-intussuception profile image
Mary-intussuception in reply to Kimbo8

But you have not taken any since January have you?

If this why GP stopped the maintenace dose ? Because of January result?

Kimbo8 profile image
Kimbo8 in reply to Mary-intussuception

I haven't taken any since Jan and that was why GP stopped maintenance dose but have spoken to practice manager who has said she will take action

Mary-intussuception profile image
Mary-intussuception in reply to Kimbo8

So - did you stop taking them in January by your own choice?

And that was why GP stopped prscribing.

Kimbo8 profile image
Kimbo8 in reply to Mary-intussuception

No I didn't stop them by choice. GP told me to

Mary-intussuception profile image
Mary-intussuception in reply to Kimbo8

It's good to hear that the Practice Manager is going to take action.

You shouldn't have had to go through all this though. Suffering, which should have been avoided by leaving you on your Vitamin D. You clearly have absorption issues and need your supplements. I hope the GP who stopped them in January has realised this grievous error.

Now you know about the loading doses, make sure you check your prescription before leaving the practice. Or check on here. Any queries, I would always take up with the Practice Manager from now on.

It seems you have made a breakthrough today, with the Practice Manager and Haematology.

Hopefully you will get things sorted over the coming days and next few weeks. I hope you begin to feel better soon. As I already said, though, you should never have had to go through this.

Keep us informed (if you find the time!!). Expect you'll have lots of 'catching up' to do when you feel better.

God Bless x

🐥

Mary-intussuception profile image
Mary-intussuception in reply to Kimbo8

Sorry Kimbo, I misunderstood your last answer in my haste! Got a bit mixed up I think going between both threads. Have sent a pm. Remember to ask Haematology to test for Pernicious Anemia. I have no experiece of this but I think the tests are Intrinsic Factor and MMA? I think treatment is supposed to be started immediately anyway.

x

SlowDragon profile image
SlowDragonAdministrator

When you see GP tomorrow on other post get this sorted as well

You should be prescribed LOADING dose

800iu is useless as maintenance dose with Hashimoto's

Likely to need at least 2000iu as maintenance dose. Maybe more.

Obviously much higher dose to increase level. 10,000 daily is typical

If you have a supportive partner, family member or friend it might help to take someone with you to the appointment

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