Hi

[Craigmhor39]

New to the group keen to hear from others in similar situation to myself. Hypothyroid, pernicious anaemia, depression, constant fatigue yet can’t sleep overweight but told by endo that symptoms being linked to my condition is a bit of a red herring!

[cwill]

So the endo is dismissing your symptoms as not being relevant? New day new endo sayings for the collection.

[SlowDragon Administrator]

If you post your most recent thyroid and vitamin results and ranges, members can advise

Ideally a TSH, FT4, FT3, TT4, Thyroid antibodies, vitamin D, folate, ferritin and B12

What dose of Levo and how frequently you get B12 injections, do you supplement anything else

All thyroid tests should be done as early as possible in morning and fasting and don't take Levo in the 24 hours prior to test, delay and take straight after. This gives highest TSH and most consistent results

Is this how you do your test?

Always take Levo on empty stomach and then nothing apart from water for at least an hour after. Many take on waking, but it may be more convenient and possibly more effective taken at bedtime

verywell.com/should-i-take-...

[shaws Administrator]

So, the Endo is covering up his ineptness to relieve the patient's clinical symptoms.

First - ask him to name a few of the clinical symptoms. He will barely know one - maybe weight gain but not the other disabling ones.

I'll give you a link and you can tick off the ones you have and I am sure in will be than single item.

thyroiduk.org.uk/tuk/about_...

Has he tested your thyroid antibodies to see if you have an Autoimmune Thyroid Disease (hashimotos). Has he tested Free T4 and Free T3? the following is about FT3:-

FT3 = FREE T3

T4 converts to T3 and is the only thyroid hormone actually used by the body's cells.

The approx. reference range for Free T3 is 4 to 8.3

We at Thyroid UK believe that you need to know your Free T3 level too because this will often show low if you are not converting, and high if you have blocked receptor cells. Even if you are converting, the body needs the extra T3 that a normal thyroid produces. There has been some research to show that people feel better on a mixture of Thyroxine (T4) and Triiodothyronine (T3). Effects of Thyroxine as Compared with Thyroxine plus Triiodothyronine in patients with hypothyroidism – The New England Journal of Medicine Feb.11, 99 Vol. 340. (Click here for this article).

With all of these tests, your results could be anywhere within the range and you would be classed as "normal". If you are at the very edge of the range, either at the bottom or at the top, you could be classed as "borderline". Neither you nor your doctor truly knows what your normal is, if you did not have a blood test done before you became ill. There are also particular reasons why the blood tests remain in the normal range. If you are not converting from T4 to T3 or if your cells are not taking up the T3 normally, your T4 levels and your TSH levels will still show as normal.

The Broda Barnes Foundation tell us "Dr Barnes found that the primary reason for the inaccuracy of the blood tests for thyroid function is that the thyroid hormones are not utilized in the blood, but are utilized intracellularly. Therefore a patient can have enough thyroid hormones circulating in the blood to give a "normal" reading, but if the hormones are not getting into the cells, the patient will be hypothyroid.

thyroiduk.org.uk/tuk/testin...