give up

[wendypartridge]

am i the only one who feels constantly tired, weak and dizzy ,I seem to be getting worse, not better, its all becoming to much to cope with ,this is not living its a case of painful long empty days and a doctor that does not understand

[Rmichelle]

If its any consolation i feel like rubbish, i am hyper with hashimotos. I felt half decent last week with 4 goid days but since endo has cut me down to 10mgs carbi instead of 20mgs im really back to square one. I too tired exhausted, cold then hot. Muscle acges and tge dreaded breathlessness is back and the slightest movement sets of palps. I am back to wanting to see that light at tthe end of the tunnel again. I know how you feel and so many people here will know that- i felt i had some quality of life back last week. We have to keep going. Going to have my bloids done again tomorrow as i think i may have hit hypo symptons.xx 😕

[wendypartridge in reply to Rmichelle]

Yes i had a few weeks of feeling normal, but now for the last few weeks i am getting worse since I had Rai in Feb this year I have not felt great but even feeling a little better is better than this . I hope you feel well soon xx

[Rmichelle in reply to wendypartridge]

Hope you do too, ive just had a good cry just to make me feel better- i have to get the upset out and then i can fight in a few days.xxx

[wightmouse]

Please don't give up its still early days take one day at a time and pace yourself until feel more like yourself.

I had RAI 9 years ago and have never gone back to normal! I had to give up my job ironically in the NHS as I ended up in bed 4 days a week. Got diagnosed with CFS 5years ago th when fibromyalgia a couple of years ago.

I would not give in. On a good day would do loads to suffer later. I wish I'd found healthunlocked at the beginning of my journey I may have gained improvements sooner.

I started asking for my thyroid results to discover they were saying my TSH was "normal" to discover they were 5! Which for someone with no functioning thyroid is ridiculous!

I've used blue horizon and medichecks finger prick tests to get my vitamins optimal but still can't get B12 up. As it makes my insomnia worse.

I have high cortisol which I have tried every adaptive going. I came off HRT 5 years ago because it can interfere with thyroid and was terribly ill but it increased my free t4. I can't get my t4 and t3 up to the top third of range as suggested. Otherwise I only sleep about 2hrs. I am still getting hot flushes and night sweats but not as bad but fingers crossed I'm getting a bit more sleep?

Just recently paid to get oestrogen/progesterone tested to find I've got high oestrogen and being 58 way past menopause so another thing that could be interfering with thyroid. As usual GP didn't want to know.

It's a slog but you will get there make sure vitamins D,b12,ferritin and folate are optimal. Get your tsh near to 1 as you can without feeling over medicated. If your t3 is too low try and get t3 added if possible.

Being overactive has took its toll already on your body and it needs time to heal.

I am no longer confined to bed and have to take life at a more leisurely pace. Which for me when I was always on the go has been hard.

I wish you well, you will get there it just takes time. It's a marathon not a sprint! Lol.

[wendypartridge]

wightmouse thank you for your reply, I cried when I read it because you have given me hope ( which i had lost) its a marathon, not a sprint makes so much sense, After reading your story I intend to keep fighting the good fight. I think because i felt a little;le better for a while i overdid everything from driving to cleaning i remember thinking' yes that's it i am well its all gone' till a few weeks ago when slowly I started feeling ill again, I will take your advise. I have to say there are many days i feel like staying in bed,

[wightmouse in reply to wendypartridge]

Just noted you've just increased your dose by 25mcg after a Tsh of 3.33. You've a few weeks before you'll notice a benefit of the increase.

Make sure you get your bloods tested at 6 weeks after increase. Hopefully this will bring your Tsh down if not another increase may be needed.

Also your vitamins d was low. If you've managed to get this up to optimal a maintenance dose through the winter is a good idea. See some of seasidesusie posts/ replies for good info. X

[wendypartridge]

thank you so much xx

[thyroidrose in reply to wendypartridge]

Wendy I am dizzy or at least lightheaded too, so i feel your pain. I am also not optimally treated so there is hope for us, absolutely. I do let my mind wander to the dreaded 'what if this is as good as it gets' thought here and there, and today is a bad day for sure. But other days are better and I find it hard to believe that we will feel like this forever. In my heart of hearts I believe that it is a passing phase and in a year or two we will be back to normal. Thank goodness for the replacement hormone, I cannot imagine what people did 300 years ago.... yikes.....