NDT and Hashi's: Hi I have often read that some... - Thyroid UK

Thyroid UK

137,936 members161,765 posts

NDT and Hashi's

lucylocks profile image
15 Replies

Hi

I have often read that some people with hashi's do not do well on NDT.

Why is this, is it because it can raise antibodies? if so why does it.

Thank you.

Written by
lucylocks profile image
lucylocks
To view profiles and participate in discussions please or .
Read more about...
15 Replies
Heloise profile image
Heloise

David Clark video that talks about this is #10. His contention that the NDT may resemble your own T4 and T3 and be attacked as it did with your natural substance. He seems to think this is common but I am very skeptical about that.

youtube.com/watch?v=2xm60Lb...

lucylocks profile image
lucylocks in reply to Heloise

Thank you Heloise for the video. Very interesting.

I had been on NDT for 15 months when I became very unwell with what I thought was a virus. Had my bloods tested and my thryroglobulin ab's had risen from 27 to 32.02 top of range 34, so I do wonder if I had actually had a hashi's attack although the ab's were still in range. Since then I have increased my NDT but have developed bad eczema and hives.

Heloise profile image
Heloise in reply to lucylocks

I read you other responses and wonder if you should try synthetic T3 only. Lots of us have done well just taking T3. If you have eczema, it's almost always a gut problem. Many people with a thyroid problem may also have sibo. That's an overgrowth of bacteria in the small intestine. If you have a better doctor than I have, you test for this with a breath test. High cortisol, which hypos often have, will close valves in the gut such as the ileocecal and allows this backflow. Honestly so many things can go wrong when you are hypo you would think whole clinics would be devoted to nothing but...

lucylocks profile image
lucylocks in reply to Heloise

Thank you Heloise,

I was going to go back to levo. but I will have to think whether T3 would be a better idea.

I will look into Sibo. I am sure the NHS Doctors here in the U.K. will not do a breath test for it. I will look if I can get it done privately.

Totally agree with you there really should be clinics devoted to thyroid problems.

Heloise profile image
Heloise in reply to lucylocks

I have found taking apple cider vinegar (the unfiltered one with probiotics) can be very, very helpful. It blocks some of the starch for one thing which then helps with insulin resistance. Of course, it also helps break down nutrients in your food. Just a teaspoon or two which I dilute with a little bit of water before meals. It also whitens teeth a bit.

lucylocks profile image
lucylocks in reply to Heloise

I actually bought some apple Cider Vinegar, then read it can make eczema worse so I have not tried it yet.

I am seeing a specialist tomorrow about my rashes and hives, so hopefully I will get some answers. I can then look at the ACV.

Thank you.

Heloise profile image
Heloise in reply to lucylocks

Well, I guess the only way to know is to try it. I will say that vinegar tends to kill certain bacteria like klebsiella but any overgrowth isn't good. it's all a matter of balance. I'm not sure if that is meant to say that if this is due to a fungal problem, that may become worse.

My friend is having a huge problem like yours but she has been on acid reducers most of her life. This lack of acid in the stomach can cause all sort of fermentation and change the microbiome. They have given her every test and every skin cream/medication made to no avail. Most were steroids and some were fungicides. Not good. Attack from the inside. Sibo patients have a diet you can look up or take a food which is a concoction of nutrients the body needs. It is the stuff given to patients with stomach tubes. The idea is that it is all predigested.

lucylocks profile image
lucylocks in reply to Heloise

Oh your poor friend.

I will look up the Sibo diet this evening.

Many thanks for all your help.

greygoose profile image
greygoose

Some people without Hashi's don't do well with NDT. NDT isn't for everyone, any more than the other forms of thyroid hormone replacement. :)

lucylocks profile image
lucylocks in reply to greygoose

Hi greygoose,

I have not felt much better on NDT than I did on levo..

In hindsight I wish I had added some T3 to the levo. before going straight to NDT.

Please see my reply to Heloise and if you can offer any advice I would be really grateful.

Thank you.

greygoose profile image
greygoose in reply to lucylocks

I, too, would assume you have Hashi's, as the second test was so close to the top of the range. Some Hashi's people never develop really high antibodies. So, I would suggest you try a 100% gluten-free diet, to see if that helps. And, you could also take some selenium. :)

lucylocks profile image
lucylocks in reply to greygoose

Thank you greygoose,

I went GF ten weeks ago, and have now developed eczema and hives.

I have read hives can be connected to hashi's. (had them really bad yesterday) don't know about the eczema though.

Went dairy free last week. I will get some selenium thank you.

greygoose profile image
greygoose in reply to lucylocks

I don't know anything about hives, but eczema can be a hypo symptom. Dairy-free might very well help it.

Ten weeks isn't very long to feel the benefits of gluten-free.

lucylocks profile image
lucylocks

I am glad NDT has worked for your family, but we are all individual and what works for one does not necessary work for another.

My antibodies have actually risen on NDT.

phoenix23002 profile image
phoenix23002

reallyfedup... I sure wish the thyroid world was as black and white as you make it out to be. I don't have hashis and I do fantastic on NDT and horribly on levo. My sis who is just a year younger than me and has hashis does horribly on NDT and wonderfully on levo. And she has been on levo for almost thirty years... since the mid-eighties. There is a small sub-group of thyroid sufferers who will be optimal on levo and NOT NDT. We are all different and there is no 'one size fits all' especially when it comes to hypo medications.

You may also like...

Anyone heard that ndt is bad for hashis?

hormones? Plus i have seen lots of people on here with hashis say they do really well with ndt....

Can I take NDT with hashi

Antibodies are high. Doc changed my levo to ndt (on my request) and I feel so bad. Thyroid sore and...

Hashi's

say they are 'highly positive'. Can anyone shed me some light on why I'm getting treated this...

Hashi's or not.

thyroid antibodies and hashi's but he said for someone to have hashi's there AB's would have be in...

Hashi's in remission!

since Sept 17. Antibodies when first diagnosed: TPO 80.6 (<34) TGO 565.1 (<115) Antibodies before...