Dessicated Thyroid advice please ?: Hi I'm new... - Thyroid UK

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Dessicated Thyroid advice please ?

Basslady profile image
4 Replies

Hi I'm new here. Please can someone advise how I find a doc or similar to help me change from Levothyroxine to Dessicated Thyroid as I think the Levothyroxine is making my Tamoxifen SE worse. Some days I can hardly walk and I am not a lazy person.

Pretty desperate tbh

I live in Stockport

Thanks Everyone

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Basslady
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Skeptical profile image
Skeptical

Check with a pharmacist/chemists who carries dedicated thyroid and ask them which docs in your area prescribe it

Clutter profile image
Clutter

Basslady,

Have you had thyroid levels checked since you've been prescribed Tamoxifen? It sounds as though you may be undermedicated. Do you take Levothyroxine at least 2 hours away from Tamoxifen?

NDT isn't licensed for UK use so it won't be prescribed on the NHS.

Email louise.roberts@thyroiduk.org for a list of member recommended endocrinologists and private GPs who might prescribe NDT. You should check with their offices prior to confirming an appointment that they do prescribe NDT.

Alternatively you can buy NDT online and self medicate. Members can recommend sources if you wish to source your own.

Basslady profile image
Basslady in reply to Clutter

GP says normal but i feel terrible

most recent ( ladt week ) T4 12.8 and TSH 2.4 which does look normal but I know these are thyroid symptons...

No idea re T3...

I will email Louise Roberts - thank you for your reply. Dulcie

Clutter profile image
Clutter in reply to Basslady

Basslady,

You are undermedicated to have TSH 2.4. Ask your GP to increase dose. The goal of Levothyroxine is to restore the patient to euthyroid status. For most patients that will be when TSH is 0.3 - 1.0 with FT4 in the upper range. FT4 needs to be in the upper range in order that sufficient T3 is converted. Read Treatment Options in thyroiduk.org.uk/tuk/about_... Email louise.roberts@thyroiduk.org if you would like a copy of the Pulse article to show your GP.

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