Hello folks, I am posting this because I have just been diagnosed with LS and apparently 50% of LS patients are also hypothyroid, as I am. It is thought to be another auto-immune issue. I had never heard of the condition and so didn't realise my symptoms were LS. I want to spread the word so that people know what to keep an eye out for.
It is nasty and can be doing its work on your vulva, Labia and clitoris without you being aware. Men can also have this condition on their dick but it is a bit easier for them to see what is going on and get some help (sorry folks, no point in beating about the bush, LOL). If I remember rightly, the webcast I saw said that pre-pubertal and post menapausal women get the itching. Anyone who is still ovulating can have the condition but are less likely to get diagnosed as no itching and they may not go to the Dr with their painful intercourse.
Symptoms can be itching around vulval area (unless you still ovulate) your pee can irritate the skin, painful intercourse, reduced clitoral sensation and visually, little white shiny spots and skin changes in the area, white, papery skin that tears easily. Odd pains in the vaginal area are also possible and a heightened sensitivity of the clitoris due to it being grown over. Can spread round to the anus too. It can cause the labia minor to disappear, vaginal opening to narrow and skin to grow over the clitoris. There is NO DISCHARGE. Untreated, it can be devastating for all your bits it's pretty shocking actually. A percentage of cases do turn cancerous.
There are pages on the Patient website which outline the treatment protocol which your GP should follow but the most useful info is a long webcast from an American specialist, which pretty much lays it out there. At 11 minutes he gets into the sort of physical changes that can be caused by LS. It is graphic. The webcast is called 'Lichen Sclerosus: The Unspoken Pain'.
I hope that this is helpful