T3 high out of range: Dear all, I have received... - Thyroid UK

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T3 high out of range

Nutripea1220 profile image
17 Replies

Dear all,

I have received my bloodwork back and hoping some of you can give me your thoughts.

I know some feel I don't trust my doctor - I DO! I love him! I just want to hear other experiences like mine.

I increased my T3 again (felt HORRIBLE when I decreased it) so I'm back up to 112.5mg T3 only.

My bloodwork came back on that dose. I must point out it took 37.5 mg a few (5) hours before blood was drawn.

My T3 is now clearly very high and out of range.

The thyroflex test says I'm hypO. HypO!

My doctor INSISTS I am not hyper. He says all the bloodwork shows is that I absorb the medication. I have no symptoms of hyper (once I went back up to 112.5 my heart has been calm... was beating furiously on 100). Under 100 and it POUNDS. Now it feels calm. I'm not shaky, I don't feel hyper AT ALL. I'm not losing weight. I'm not gaining weight.

In anyone's experience: Can one have t4 and TSH almost zero (due to being on T3 only) and T3 considerably out of high range... and not be hyper? I love my doctor- I do trust him - I just want other experiences. I feel good, the sudden 8lb swelling went away. I sleep well. I no longer get the neck rash I got taking t4 of ANY kind. I want to stay here.... thoughts on safety doing so? My doctor believes I can INCREASE T3 dose of anything due to small clinical hypo symptoms I still have: peeling nails, thyroflex test....

My IGF1 was tested, it's perfect. My D is high range. (Supplementing 5000iu)

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Nutripea1220 profile image
Nutripea1220
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17 Replies

I believe that it's normal to have a suppressed TSH and low T4 when on T3 only. Your T3 is high simply because you took a dose too close to the blood test. So your results are pretty much what you'd expect. You're definitely not hyper.

Nutripea1220 profile image
Nutripea1220

That's what my doctor says. Definitely NOT hyper... can you explain why you say that? THANK YOU!!!

shaws profile image
shawsAdministrator in reply toNutripea1220

The blood tests were invented for levothyroxine (T4) only.

So the blood tests when we take NDT or T3 added to T4 or T3 only cannot correspond, I believe.

The priority is how we, the patient, feels on a particulard dose.

Clutter profile image
Clutter in reply toNutripea1220

Nutripea1220,

I don't agree. T3 can peak in the blood up to 6 hours but if FT3 was 10.84 five hours after last dose I believe you are very overmedicated and need to reduce T3 dose3.

guysgrams profile image
guysgrams in reply toClutter

According to many it isn't just the test results we should be going by. How we feel is very important. If we feel hyper or have signs than obviously we are. I have asked that question in a Paul Robinson FB group and was told not to go by numbers only.

Clutter profile image
Clutter in reply toguysgrams

Guysgrams,

Yes, a lot of people say that. I disagree. One can be overmedicated without having hyper symptoms but there are risks to having FT3 over range. It's up to individuals to decide how risk averse they are if they intend to overmedicate.

shaws profile image
shawsAdministrator

If you had blood tests shortly after taking after taking T3 your blood tests will be skewed.

If we are hypo we don't produce sufficient thyroid hormones and if we don't take levothyroxine our T4 will be very low. If we take T3 only it will show high as the blood tests were invented for levothyroxine alone.

This link is by a doctor who took 150mcg of T3 himself, as people who have thyroid hormone resistance can only improve by taking T3 only and usually at higher doses than most people. He also only took a blood test for the initial diagnosis and thereafter it was all about how the patient improved and not about tests.

web.archive.org/web/2010103...

web.archive.org/web/2010103...

Nutripea1220 profile image
Nutripea1220

Thank you - this is SO HELPFUL!

greygoose profile image
greygoose in reply toNutripea1220

Nutripea, if you are replying to someone, you need to click on the green reply button under their post. Otherwise, they won't know you've replied.

You can't be hyper because you're hypo. Taking T3 doesn't change the way your thyroid works. But you can be over-medicated. Whether you are or not depends on so many things. For on thing, it depends on how much faith you have in the range itself! Personally, I don't have much. And, remember, a blood test only tests what's in the blood, not what gets into the cells. You could have some kind of hormone resistance. But, to know that, you'd need a urine test. Would your doctor understand a urine test? Not many do. Some people just need their T3 higher than others to be well. But, if your doctor is keeping a close eye on you, then you probably won't come to much harm. :)

Nutripea1220 profile image
Nutripea1220

GreyGoose THANK YOU!!! This is incredibly helpful!!!!!! I don't have a green reply button (just a grey one in my phone) so I truly hope you get this. I never knew this!!!! Incredible knowledge!!!! 🤗❤️ thank you so so so much!

Marz profile image
Marz in reply toNutripea1220

greygoose will now receive an alert :-) Click onto your Grey reply button if it is not green !!

greygoose profile image
greygoose in reply toMarz

I didn't know that! It's grey on a phone? I wonder why.

Marz profile image
Marz in reply togreygoose

...maybe because she is replying to greygoose !! Mine is green :-)

greygoose profile image
greygoose in reply toMarz

Thank you for confusing me even further! lol In future, I'll just say the 'reply' button under the post! :D

Nutripea1220 profile image
Nutripea1220 in reply toMarz

Very funny!!!! 🤣

greygoose profile image
greygoose in reply toNutripea1220

You're welcome. I didn't know the button was grey on a phone, because I'm one of those rare people that doesn't have a mobile phone. I'm not a dinosaur, I just hate the bloody things! I had to have one when I was working, but I don't want to be permanently joinable! lol Sorry, that's got nothing to do with anything. Just explaining my ignorance! :)

jgelliss profile image
jgelliss

I learned from my experience over the years especially of late . That blood labs are serum results and they fluctuate all the time plus lab numbers can sometimes be skewed . What is more telling is cellular results and that is our symptoms . greygoose is on the mark . Nutrients should not be over looked . They help with our thyroid meds to work well for us . Vit"D" Selenium , B-12/folate , Iron if low . Don't rule out labs because you have what to compare to when symptoms rise .

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