Hi, this is my first post in this forum, I apologise for the length of it.
I am 54, I have Polycythemia Vera which caused a stroke, and hypothyroidism. I have regular vena secctions where 450mls of blood is taken each time. I was on levothyroxine 150mcg, but wasn't well on it, so tried NDT and T3, I have been even more ill since starting this 6 months ago, not been able to get it to work for me, also on hydrocortisone for tested low cortisol. I feel absolutely dreadful. It may be my blood disorder that is stopping this from working, as my various blood levels fluctuate continuously.
I have decided to go back on Levo with added T3. I was on 1.5 grains NDT and 37.5mcg T3 spread over 3 doses. I would appreciate advice on what dose of levo to take. I took 50mcg this morning and T3 during the day and I feel terrible, I am bed ridden as I write this. I have been very ill over the past 6 months and I really need to feel better. Had a vena section for my PV on Monday. Haematocrit 0.394 and HB 12.4 post vena section, this is the lowest it i has been so far. N.B I don't have Hashimotos.
Thank you for reading this, I do hope there is someone out there who can advise me or at least tell me what has worked for them.