Newbie

[KJ40]

Hi all, 👋

So I've been for my endo appt today, my calcium is still high, t4 is still high, PTH levels are high, he says I'm all good!!!! I'm at my wits end he just won't act or listen 😢

[shaws Administrator]

Get a print-out of your results with the ranges. That's the only we we, as sufferers, can fathom out the best way to go with the help of members who've also been there - done that.

He should send a copy to your GP or phone his Secretary and ask her to email them to you.

We are entitled by LAW to have copies of our results.

[KJ40 in reply to shaws]

Hi, He showed them to me my TSH was 59, my T4 was 26, and Calcium 9.78 if I've remembered right!!

[SlowDragon Administrator in reply to KJ40]

Best get print out of actual results

Plus a bit of background to your situation on profile or here

Are you on Levo, got antibodies, vitamin test results etc

[shaws Administrator in reply to KJ40]

We also need the ranges for the results as labs differ, just to complicate things. Your TSH was high and you are hypothyroid and the aim is to get your TSH down to 1 or lower with a FT4 and FT3 towards the upper part of the range.

You have a blood test every six weeks with a 25mcg increase of levo until your TSH is lowered and you feel much better.

Ask GP when you next have your blood test to also B12, Vit D, iron, ferritin and folate. All have to be optimum, not somewhere in the range.

Blood tests always have to be at the very earliest, fasting (you can drink water) and allow a gap of 24 hours between last dose and test and take afterwards. This helps keep TSH at its highest as doctors are apt to adjust dose and think if it is somewhere in the range you are on sufficient which isn't the case.

[KJ40 in reply to shaws]

Ok thanks, I am back at GP this week so will ask, he also mentioned hyperparathyroid??

[shaws Administrator in reply to KJ40]

o.k.