Thyroid surgeon: So I've just had an appointment... - Thyroid UK

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Thyroid surgeon

Lisas_tired profile image
9 Replies

So I've just had an appointment at the hospital, thought I was going for a scan, I had high antibodies last year, spoke to a new doctor recently & she said I should've been scanned for my thyroid.

Anyway, he was exactly the same as a doctor in my local practise, he literally did not have the time of day for me, in his eyes, all my levels are 'within range' (results in previous posts) so I'm

'Normal'.

He said he couldn't understand why I was there & shouldn't be seeing me unless I had cancer 😳 excuse my language but he was a complete asshole..... he said we all get antibodies & mine was over 800 which just meant my medication needed to be upped & in time, I may get them again & they will up my meds again!!!!

I asked him why my ranges go up & down & everything is just normal in his eyes....I mentioned T3..... game over..... he rolled his eyes & said basically it doesn't mean anything!!!!!!

What an absolute joke....I'm seeing the doctor who referred me at 5pm so will see what she has to say!!!!

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Lisas_tired
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9 Replies
greygoose profile image
greygoose

lol You got to laugh! High antibodies just mean you need your dose increased! What a clown! He doesn't know the first thing about it.

Sorry you've had such a disappointing appointment. But I'm rapidly coming to the conclusion that hypos - especially hypos with Hashi's - should stay well away from endos, because they seem to know less and less. :(

Lisas_tired profile image
Lisas_tired in reply togreygoose

I can't believe it!!!! He had all the answers- his own beliefs obviously & because I didn't have cancer, he did not want 2 know at all!!!!

He said 'any questions' I just said 'oh no, everything seems to be perfect for you' 🤦🏼‍♀️ absolutely pointless!!!!!! Can't wait to see what my doctor says!!

I agree totally with you!!!!

Clutter profile image
Clutter

Lisa's_tired,

I don't understand why you were referred to a thyroid surgeon if your GP wanted an ultrasound scan to see the condition of your thyroid? I'm not sure how the thyroid surgeon can tell whether you have a malignancy without seeing a scan to rule out nodules.

Having a malignant thyroid nodule doesn't affect your thyroid blood levels.

High thyroid peroxidase or thyroglobulin antibodies mean you are positive for autoimmune thyroid disease (Hashimoto's). There is no cure for Hashimoto's which causes 90% of hypothyroidism. Levothyroxine treatment is for the low thyroid levels it causes. Levothyroxine dose will periodically need increasing to compensate for the progressive loss of thyroid function.

Many people have found that 100% gluten-free diet is helpful in reducing Hashi flares, symptoms and eventually antibodies.

chriskresser.com/the-gluten...

thyroiduk.org.uk/tuk/about_...

Lisas_tired profile image
Lisas_tired in reply toClutter

Yeah I thought the same, I wondered what I was doing there to be honest!!!

And he made me feel like I shouldnt have been there!

Thanks for the links, I'm strictly gluten free now & a low carb diet too, purely because lately I cannot stomach carbs 🤦🏼‍♀️ god knows why!!! X

shond2015 profile image
shond2015

Hi Lisa_tired

If it weren't so serious, I would have liked to have rolled around the floor laughing until it hurt!! In truth however, the more I read on this site about people's experience when seeking help from the medical profession, the gloomier I feel about the whole thing. Please do share your 5pm GP visit/ experience....I am dying to hear!! best wishes, Shon

Lisas_tired profile image
Lisas_tired in reply toshond2015

Been to my Gp, she said she had a really stroppy letter off him previous to that & suggested I go for a private scan to make sure everything is ok!!! She was quite shocked he didn't scan me.... my T3 is on the lower end but she said it's not that great to be taking it as it can speed the heart rate and some cases cause osteoporosis... so basically I need to stop so much exercising & using all my energy!!!!! Then I will feel better, I'm putting so much stress on my body!!!!

Lisas_tired profile image
Lisas_tired in reply toshond2015

And yes, peoples experiences on here are shocking 😳

shond2015 profile image
shond2015

Well,well, what a surprise? ( not!) ........A GP trying to get you off the T3 drug, giving you the standard excuse of " it's dangerous....can increase your heart rate" Stick to your guns and make sure you continue to get your T3 drug if it is helping you feel better? I now firmly believe (taken 2 years) we've got to follow what our body is telling us PS/ and if T3 does help you, then I hope you'll find time to write to your local MP to protest against the possible withdrawal of T3..(template letter can be emailed to you from thyroid UK.. best wishes, Shon

Lisas_tired profile image
Lisas_tired in reply toshond2015

Well unfortunately I've never been described it, I fought for them 2 test it last year after having antibodies & it's remained low ever since.... I know somebody who I can get it from (but I don't even know if it's the real stuff as I've never seen a pack) 🤦🏼‍♀️ so I'm debating what I should do!!! She's made me think it will do more damage than good :(((

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