Isolated Hypothyroxinemia

[Stelladog1]

Can anyone else tell me if they have come across a diagnosis of isolated hypothyroxinemia ? I am supposed to have it but can't seem to find any information on it .?.

[Clutter]

Stelladog1,

google.co.uk/search?q=Isola...

[humanbean]

In one of your earlier posts you said that you'd spent 8 years in Cyprus on Levo and T3 and felt well. Then when you came back to the UK you were taken off the T3 and the Levo and were told you didn't need treatment. Have I understood that correctly?

Your TSH may have been suppressed by the T3 you took and, having been taken off the T3 and the Levo (T4), your TSH might not rise to the same level it was before you were ever treated. TSH can be stunted by treatment with T3 and it may stay stunted for ever if treatment is taken away.

Your TSH needs to rise to increase your T4, but yours won't rise enough, so appears to your doctor to be "normal". Since it won't rise enough your T4 will stay low. And anyway, your thyroid gland is not healthy, so it may be unable to produce enough T4 for your needs, whatever your TSH is.

To a poorly trained UK doctor who understands nothing about the thyroid and the effects of your previous treatment (which describes 99.9% of doctors in the UK), this will all be a mystery. But I don't think it is a mystery. You need to be on the treatment you were on in Cyprus, and with the appalling state of thyroid treatment in the UK you will probably have to source it yourself like so many of us have to.

[Stelladog1 in reply to humanbean]

Yes human bean that is correct about cyprus , but why do you say my thyroid is not healthy , ? I feel absolutely terrible ,the same as I was before I went on thyroxine ,when I got to a point where I just couldn't go on anymore

[humanbean in reply to Stelladog1]

You have hypothyroidism which is usually caused by a dysfunctional thyroid gland.

If your thyroid was healthy, and assuming you don't have central hypothyroidism (which I agree is actually a possibility), then you wouldn't need thyroid treatment at all.

[Stelladog1 in reply to humanbean]

Thankyou for your help humanbean my thyroid levels in July are tsh 2.8 T4 was 11 and t3 was 6.3 , I am not sure what this means , I hope you do ??

[greygoose]

Medscape says :

'Isolated Hypothyroxinemia

Isolated hypothyroxinemia is characterized by low fT4 concentrations with normal serum TSH levels.[2] Hypothyroxinemia can be due to relative iodine deficiency where the thyroid produces triiodothyronine instead of thyroxine to preserve iodine as raw material, but it is a condition also observed in populations with iodine sufficiency.[64] Notably, by definition of reference intervals, 2.5% of healthy women will also have fT4 concentrations below the lower reference limit.'

Has your iodine been tested?

[Stelladog1]

I don't think I have been tested for iodine but I have everything else

[Stelladog1]

Thankyou grey goose