Too much or too little??: Hi I live in vancouver... - Thyroid UK

Thyroid UK

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Too much or too little??

Mandox profile image
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Hi I live in vancouver and had my thyroid gland remove do to cancer. First off they put me on 150 sinthroyd but in my last visit the doctor told me I had my leves really low so he took one pill off my week and then next visit he change it again to a lower dose and I have been feeling all wack ever since I can't really get a good night sleep and have weird stream of though :( I feel like I have to much synthroyd but how can it be with a lower dose?? Any advices? Thx

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Mandox profile image
Mandox
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Clutter profile image
Clutter

Welcome to the forum, Mandox.

If you post your recent thyroid results and ranges members will advise. Please also post any blood test results and ranges you have for ferritin, vitamin D, B12 and folate.

Those people without a thyroid gland, me included, mostly feel unwell with hypo symptoms whatever dose of levo/synthroid/T4 we may take. Putting the results of blood tests to one side, you take more of this chemical and you feel well for a while, then cut back as you start to feel unwell again, then increase because you feel unwell again........................ad nauseum!

Chances are you would do much better with some added T3/liothyronine. Much better chances of feeling well if you ditched these synthetics and started on the natural product. You stand a reasonable chance of getting some T3 but probably no chance at all of getting any Natural Desiccated Thyroid (NDT, often referred to by the brand name Armour but available from Thailand as eg brand Thyroid-s or Thiroyd).

PatsyCline profile image
PatsyCline in reply to

My dose is always being changed every 6 months or so just by going on blood tests and not my symptoms but I am no better after 9 years. I am going to write to Endo asking, no, demanding I be at least trialed with T3 or NDT. I won't hold my breath! If you don't mind Panda I will use your sentence ending - ad nuaseum! in my letter.

in reply to PatsyCline

No trouble. Just don't try holding your breath while you await being given T3 or NDT or we'll be holding your funeral very soon.

It took me 8 years before I gave up on the docs and chose my own solution - NDT from Thailand. At my last appointment at the docs the only thing on offer to me, in addition to as much levo as would sink a battleship, was a fistful of weight reduction leaflets and a recommendation to go to the gym.

I had no enthusiasm to inform her that I would have used up all the energy I was capable of producing that day by simply getting to the front door of the gym.

She seemed very keen on shooing me out of the door which was the final insult necessary for me to lose all faith I had ever had in docs and search online. At that time NDT was readily available on Amazon and Ebay and paid for through Paypal, but no longer I'm afraid.

I am now seeking redress for the troubles I have been through by giving back in kind. They (and I don't mean anybody at mere GP level) have tried several times to fob me off but I will stand for nothing less than NHS prescriptions for NDT for life for myself with the certainty that a meaningful review be held into the future licensing of NDT, Government-financed with a judge rather than any medical expert in charge and with no interference from the pharmaceutical companies. Perhaps on the lines of Hillsborough.

I have the rest of my life to spend achieving these answers and many, many people with whom to have correspondence, conducted under the Freedom of Information Act if necessary. If you lean on a wall without foundations often enough, it will eventually collapse.

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