Is it likely/possible that numerous spongiform ... - Thyroid UK

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Is it likely/possible that numerous spongiform nodules and an enlarged thyroid are causing my symptoms?

Tangawizi profile image
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I have symptoms of HYPOthyroidism; fatigue, pain, weight gain, brain fog etc. Also hard lymph nodes in my neck

But TSH=0.35. Just had official scan result back; numerous spongiform nodules and thyroid gland slightly enlarged

New symptoms; persistent eye twitch in left eye for 3 weeks+ and hardened vein in right side of neck (feels like a tendon)

Apparently, non of this is significant. Really fed up

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Tangawizi profile image
Tangawizi
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Clutter profile image
Clutter

Tangawizi,

Thyroid nodules are usually asymptomatic and don't usually impact thyroid levels.

TSH 0.35 rules out primary hypothyroidism but doesn't exclude central hypothyroidism. It may be worth you ordering a private thyroid test to check TSH, FT4, FT3, thyroid antibodies, ferritin, vitamin D, B12 and folate to rule out hypothyroidism and vitamin/mineral deficiencies.

It may be worth visiting an optician to have your eyesight checked as a twitch can be caused by eyestrain.

Tangawizi profile image
Tangawizi in reply to Clutter

Thanks clutter. I have private blood tests booked for tomorrow. TBH, I'm almost scared they will come back normal. How will I get better, if there is nothing wrong with me??

I wear glasses and have regular eye checks. No recent changes in eye activities! So, I don't think it's eye strain

Clutter profile image
Clutter in reply to Tangawizi

Tangawizi,

Do the blood test early in the morning when TSH is highest and fast (water only) as TSH drops after eating and drinking.

As one who has had an assortment of growths of my thyroid gland (now removed) I can say from 1st hand experience that these abnormalities DO cause an assortment of symptoms, although I had so little knowledge of what actually was happening to me at those times that it is impossible for me to say whether they were hyPER or hyPO symptoms. I simply took my doctors' word for it that my blood results were "normal" and I was therefore euthyroid. I can say, however, that often I simply felt like death warmed up a bit, unable to walk more than few steps at the worst either from sheer fatigue or worse. How wrong I was to believe what they told me over the years!

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