despair - arrogant endocrinologists

[jennywren11]

I've been referred to endocrinologists in Glasgow for last few years -always seeing someone different each time. Last time he had students - last year. Told him no better - I'm T3 only. He said nothing more could be done - basically i had to soldier on. I told him and his guests I wouldn't wish them to be hypothyroid and that I was not impressed that they were basically writing me off. Went to see GP today. Said endocrinologists refusing to see me. Where does that leave me now? I pay for this 'expertise'.

[greygoose]

I think you're better off without endos like that, don't you? Most endos are diabetes specialist who think they can wing it with thyroid. They can't. They don't know enough about it. It's not unusual to find a GP that knows more than most endos, but then again, most GPs are pretty useless, too.

Best thing to do is learn about your disease and become your own specialist. Then you can either guide your doctors - if they will be guided - or go it alone. An awful lot of us prefer to go it alone, rather than suffer the slings and arrows of outrageous endos. And most of us make a far better job of it!

[jennywren11 in reply to greygoose]

Aye, they've done very little beyond prescribe T3. However it's the unedifying arrogance that I'm paying for that makes me angry. Tin pot gods - and yes they are predominantly diabetes specialists. If I'd diabetes or was an animal at the vets I'd get better care. I despair. Everything is thrown at diabetes while I'm just thrown metaphorically speaking. Complete neglect

[jgelliss in reply to greygoose]

YES!!! YES!! YES!!! OVER AND OVER AGAIN . KODOS greygoose and HUGS . It's come to a point for the longest time that we as thyroid patients need to learn as much as possible from our own and others experiences to be able to treat ourselves the way we need and ought to be treated . SYMPTOMES OVER LABS!!!!! Dr's don't know ENYTHING when it comes to thyroid except for labs . Dr's don't TRUST us and don't understand how we need to be treated when we present them with SYMPTOMS . Dr will only be needed for scripts and the rest is up to US the PATIENTS to treat ourselves . I wish that thyroid meds would be given to the patients as well without scripts. NOW THATS AN IDEA :))))) The Medical SOCIETY had better have a wake up call . When patients know more than Dr's there is something wrong with the PICTURE . More and more people are having some kind of thyroid issues in our society (that's another story) and Dr don't know how to deal with it . Either Medical Schools will need to change there thyroid curriculum or we as thyroid patients need to EMPOWER ourselves to change how MEDICAL SOCIETY treats us . MAY WE ALL COME OUT WINNERS AND FEEL GREAT .

[greygoose in reply to jgelliss]

We can but dream...

[jgelliss in reply to greygoose]

You are right . But we can make our dream reality if we work hard enough and NEVER GIVE UP !!!

[Katepots]

Yes I sacked my endocrinologist as I seemed to know more than him! He kept asking me questions and could only seem to do basic tests and examinations whilst charging me a fortune! You're better off without him by the sounds of it.

How do you feel? what are your last blood results like, can you post them on here? The advice you'll get here I'm sure will be far more beneficial and free!

Have you tried T4/T3? Or you could switch to NDT.

[Kitten1978]

What dose of T3-only are you on? Is it possible that you need a dose increase?

What are your iron, ferritin (or TIBC), D3 and B12 levels? You need good levels of iron and D3 for T3 to work. B12 deficiency gives similar symptoms to being hypo....Take care