I’m seeking the community’s advice, as I’m becoming so disheartened by the numb response I’m getting my GP.
I’m at my wits end now, as my fatigue is so chronic and debilitating, that I just can’t do my job – I work in the emergency services.
I have no idea what’s causing my symptoms, and my GP appears to have given up now.
I wanted to gauge from the community on here, if people with similar symptoms as mine have successfully been medically pensioned, and if so, if you can give me any guidance or pointers to help me!
I was diagnosed with Hashimoto’s in 2008, & have been on Levothyroxine ever since, with various stages of having it increased.
In 2012, I had severe symptoms, one of the main ones being the most savage, and acute fatigue – to the point I was collapsing in the shower, & falling asleep! Pain so bad in my limbs – arms especially – that I struggled to open the kitchen cupboards to make a cup of tea.
My symptoms at this point was extreme fatigue, painful muscle spasm and stiffness in my arms, back, and legs, bladder and bowel problems, mildly slurred speech, cognitive problems such as slow word recall, substituting the wrong word, forgetfulness, etc….
After various tests, and 10mths later, Dr diagnosed me with M.E. (or CFS) but I’ve never really been 100% about this diagnosed, as I felt it was too ‘wishy washy’, especially as I was already diagnosed with Hashi.
I went part-time at work, had to literally re-design my life in every aspect, and it was an incredibly difficult 2yrs, but some mild progress was made.
However, around the spring of 2015, my symptoms came back with real vengeance, and since Sept’2016 I have been off work.
Eventually, after months of blood tests, & asking for a letter of referral from my GP to see an Endocrinologist privately, which was met with great resistance – my GP all of a sudden said that TSH levels were high – and from October 2016 onwards my meds have been increased from 150mg/day to 225mg/day – and my symptoms have actually got worse! Not better.
I kept going back to my GP detailing that my symptoms were worsening, not improving, & I was now developing new symptoms as well, being a weird type of numbness and tingling sensation in my right arm and leg – which now randomly has spread to my hands and feet – and it’s like the limb or area affected at that specific time has gone all weak - & at its worst I thought I was having a stroke! Had an emergency appt’ at the GP surgery, and fortunately I wasn’t.
I do get it on my left hand-side occasionally, but it’s more dominant on my right hand-side. (I am right handed in case that makes a difference).
My coordination is impaired, and certain tasks like driving, especially at night is like a sensory over-load, and I struggle to process everything correctly, and drive at the same time, so I now I don’t drive at night, unless I can absolutely help it.
I have bladder and bower problems too! Which is embarrassing!
I had an MRI scan recently, as GP suspected it could be MS, but the scan came back clear.
I did recently see an Endocrinologist privately, after I insisted my GP wrote a letter of referral.
He has changed my medication to 200mg of Levothyroxine/day – but also prescribed me 10mg of T3/day – which was met with friction by my GP surgery due to the cost of the medicine.
I’ve only been taking it for 3-4 weeks, so can’t fully say if it’s helping yet.
My TSH levels have since come back down near to 'normal range'