Last night I attended a local meeting regarding a local transport issue. Not connected to Thyroid, I know, but our local MP was there and I wondered if some of her advice about being heard on this topic would transfer to the current plight and impact of the withdrawal of T3?
Surely with nearly 55K followers on here, and I do realise not all are UK based, but there must be enough of us to be taken seriously?
I don't know how many on here have thought to write to their local MP's about the situation they and everyone on here is in, but if enough of us were to write to MP's and even directly to the Health Minister, would we be heard?
I do also realise that many on here are probably feeling too ill to be bothered. But I do believe that there is strength in numbers and if we hold together, we might be able to help each other even more in doing this. For the sake of an email, perhaps?
I suspect that we would have to highlight certain things, looking at our problems nationally - e.g. the increasing burden, to NHS services, we become as we get more and more ill; inability to hold down jobs; the fact that thyroid conditions seem to be on the rise (not sure where I got that from but read it somewhere recently; etc. Perhaps, the unprofessional and often downright disgusting attitudes we face from Dr's. And how because of this antiquated attitude and outlook, how, so many people are having to self source and self medicate. Which we all know is against what the NHS want, it is not what people on here actually want. They have not choice when the NHS won't listen, and seem to be doing everything to block any hope of viable treatments. The fact that so many Dr's have stopped peoples medication, going against the guidelines.
I also think that the substandard life issues should also be made clear, how this condition is badly diagnosed, by the time it is diagnosed too much damage has been done, and how its subsequent, myriad of, symptoms, impacts on our everyday life, and relationships.
I'm probably being a bit naive, I've only been on the forum a few months, and I am one of the luckier ones who is being prescribed t3 at this time, but I too still have problems and find it hard to get any help or relevant advice from my GP's. Hence I'm here. It may be that thousands of you have already done this, etc....But I live in hope, yet.
One thing this MP did say was not to do a petition, as that counts as only 1. She said we all needed to do individual letters/emails, in our own words.
She also assured us that although Parliament is now due to be dissolved the MP's will still be working and dealing with our queries and questions.
If enough of us respond in this way, would they not have to listen?