I was diagnosed with graves about 5 years ago - picked up by a routine blood test, I was asymptomatic. Put on 20mg of carb for a while and I went in to remission. Last year I started feeling unwell, anxious, tired etc and bloods showed I was very hyper. I was put on 20mg carb again and 4 weeks later (a month ago) I was a bit hypo. Carb reduced to 15mg by endo. Somewhere during the last few months I felt quite good for a few days but now I'm back to hyper symptoms again. Next blood test in a couple of days.
Is it normal to swing back and forth like this? Endo is suggesting radioactive iodine. Any thoughts?
Hi cantenor it can be tricky to get dose at correct level sometimes. I would think very carefully before having Rai as once done you can't go back, it leaves you hypothyroid so you are on levo for rest of your life. I had it done 7 yrs ago and have regretted ever since.
I've had graves for well over 6 years. I am on block and replace and haven't had to many problems. I've been told I will stay on it for the rest of my life.
I have refused rai as one day hopefully they will find a cure and I will no longer need the meds.
It took a while to settle down but I consider myself lucky as reading on here really opens your eyes as to how awful people feel.
I am on 100mg thyroxine and 10mg carbimazole.
I have an appointment next month when hopefully I will be reducing both meds.
Have you ever considered the block and replace method ?
Everyone is individual and understands there body much better than the endo's who only see you once in a while.
I'd try anything before losing my thyroid. Good luck and hope everything settles down.
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