Thyroid UK
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Can anyone shed any light or help, diagnosed with under active thyrio, started on 50 mg I have now been increased twice now 100mg.

I am ill constantly aches and pains swollen glands, always cold, tired, no energy I work full time have three kids and look after my disabled mother I was always a very active person, I have been ill for years treated for all other symtoms of under active thyroid when my medication was upped I felt good for a few days then caught yet another viruses can anyone let me now if this is normall and will it ever get better.

10 Replies

Sorry you're not well. Do you have a copy of your test results and lab ranges? It might help you figure out what's going wrong.


I will check that next time, my gps is very dark ages they do not appreciate you being pro active about your owen health.


You're not the only one. :-(

You're entitled to your results. If it is easier you can ring the surgery and say to the receptionist you'll be coming in to collect a copy of those thyroid results, when would be a good time to do that? The gp may need to rubber-stamp it so it could take a day or two but you should be allowed to have a copy w minimal fuss.


Sadly yes what you are experiencing is common





vit d3

been tested because unless all 4 have levels at least halfway in their ranges

your body is unable to convert T4 levothyroxine into the t3 that every cell needs to function

I doubt 100 mg will be your final dose

Most women are on 175mg or even 250 mg everything depends on how your body responds


Thanks iam going to ask my GP to test these.


When did you start taking Levo, and when did you get your dose raised?


Started medication about 6 months it's been raised after every blood test.


I am on the same roller coaster, I was diagnosed March last year started on 25mcg levo and increased every 2-3 months, now on 125mcg. I always feel a measureable improvement about 7 days after a dose raise and then it gradually tails off so i count the calendar til my next test which reveals not only have my numbers not improved they have gotten worse! I am not even in the 'range' at the moment which knocks a bit of the arguement out of them.

I can only suggest you do what I did which is insist on the minimum time between tests (6-8 weeks) to try and get ahead of the issue rather than keep playing catch up. I got 8 weeks this time but if numbers not improving I am going to badger for 6 after my test next week.

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Thanks for your reply it's just good to know that this I'd kind of a normall and I am not nuts or a hypochondriac.


This is a very common story, you're far from the only one and not a hypochondriac. :-)

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